Community Resources

 

Acupuncture

- Center Point Acupuncture – Mike Gonzalez (818) 358 2178 cpacupuncture.com

- Eileen Zegar (323) 744-1862 http://creativewellbeing.net/

 

Airline seats

- Corporate Angel Network 866-328-1313 www.corpangelnetwork.org Free flights for cancer patients and their families. Private jets used by corporations that have empty seats, free flights. No financial requirements. One of many advantages is low risk of exposure to contagious illness because just a few people are on plane.

- Air Care Alliance 800-296-1217 http://www.aircareall.org/ Referral source for 37 organizations that provide this service.

- Angel Flight, Inc. People Flying People in Need 918-749-8992 http://www.angelflight.com/ Angel Flight is a non-profit organization of pilots and other volunteers dedicated to serving the community by arranging free private air transportation for medical patients who cannot afford to utilize normal, commercial transportation. Angel Flight also provides services to blood, organ and tissue banks.

- Angel Flight America, Inc. www.airlifeline.org and www.angelflightamerica.org Angel Flight® America (AFA) provides access for people in need seeking free air transportation to specialized health care facilities or distant destinations due to family, community or national crisis.

- Cancer Air Flights http://www.gwccs.org/flights.html Lists a number of organizations that assist cancer survivors and their caregivers with transportation to and from treatments.

- Continental Careforce Bob Jack at 1-281-261-6626 Has a contract with Memorial Sloan Kettering Cancer Center for reduced or free airline tickets.

- Delta AirSky Wish at United Way Free flights, no financial requirements. Call 1-800-892-2757 ext. 285, Christina Walker. Difficult to get into as often short on miles.

- Lifeline Pilots 309-697-6865 http://www.lifelinepilots.org/ LifeLine Pilots is a private, non-profit organization that provides people in medical and financial distress with access to free air transportation on small (4-6 seat), private aircraft for health care and other compelling human needs.

- Mercy Medical Airlift http://www.mercymedical.org/ (MMA) is a non-profit organization dedicated to serving people in situations of compelling human need through the provision of charitable air transportation.

- Midwest Express Miracle Miles One free flight, thereafter flights are discounted. No financial requirements. Call Natalie Fuerst at 1-414-570-3644.

- Miracle Flights for Kids (800) -359-1711 or (702) 261-0494 http://www.miracleflights.com/ Transporting children to medical treatment since 1985.

- National Patient Air Travel HELPLINE http://www.patienttravel.org/ Provides information about all forms of charitable, long-distance medical air transportation and provides referrals to all appropriate sources of help available through the Angel Flight America Network. Call 1-800-296-1217. Once NPATH, now also known as www.patienttravel.org.

- Northwest Airlines, Kid Cares program http://www.nwa.com/corpinfo/aircares/about/kidcares.shtml

- The Northwest Airlines KidCares medical travel program provides air travel to children age 18 and younger who are unable to receive treatment in their home area. Those with financial need have priority. 1-612-726-4206.

- TWA Operation Liftoff http://www.operationliftoff.com/ “Providing special trips to children who are facing life threatening illness.” Free flights, no financial requirements. Operation Liftoff provides air transportation for children with a life threatening illness for a wish trip or treatment trip.

 

Appearance and resources

 

- Helen’s Room (Daniel Freeman Hospital) A positive appearance and resource center for cancer patients. 310/674-7050 x3930

- Me Again Resource center for prosthesis and accessories, including hair alternatives such as wigs, scarves, and turbans. 310/413-9643

- Positive Image Center/St. John’s Hospital & Health Center Positive Image Center provides professional services and products that may help patients deal with cosmetic side effects and comfort needs related to their cancer treatment. 310/582-7036

- Women’s Health Boutique – serving women in the South Bay Susan Brooks, M.Ed 3738 Sepulveda Blvd., Torrance, CA 90505 310-378-6235     www.whbtorrance.com

- Intimate Image 22941 Ventura Blvd., Unit M, Woodland Hills, CA 91364 818-876-7333 Online at www.intimateimage.com and www.cancerboutique.com SM location: 310-582-1960

- Laura’s Corset Shop in Glendale: Camisoles w/ drain pockets 232 N. Brand. Blvd Glendale, CA 91203 (818) 241-5616

- Original Healing Threads Mastectomy recovery tops and pant and chemotherapy treatment wear. 877-647-3900   www.healingthreads.com

- It’s Always About the Hair! Diane Martinous, hair & wig designer/stylist 818.399.9940, diane@hairsthething.com

- Lerman & Son’s Beverly Hills: 310-659-2290

- Miss Steven’s Shop 310-278-7987

- The Wig Exchange at St. Michaels FREE wigs` 3646 Coldwater Canyon, Studio City 818-762-3168

- Cricket’s Answer FREE wigs, etc incl lymphedema sleeves for needy. (717) 843-7903   Bonnie Julius or (301) 935-4411 Carole Trone http://crickettsanswer.startlogic.com/

- Active Life Orthotics, Prosthetics & Compression 1808 Verdugo Blvd. #416 Glendale, CA 91208 (818) 495 – 4610 see Patty

 

Breast cancer screening

- The Breast Cancer and Cervical Cancer Program The Breast and Cervical Cancer Control Program (BCCCP) is a federal program is funded through Centers for Disease Control And Prevention (CDC) to provide free mammograms and pap tests to eligible women. The program’s first priority is reaching women 40 and older. Here is a list of the BCCCP providers in LA County.

- The Center for Healthy Aging 2125 Arizona Santa Monica, CA 90404 310/576-2554

- East Valley Community Health Center 420 South Glendora Avenue West Covina, CA 91790 626/919-4333

- East Valley Community Health Center 680 Fairplex Dr Pomona, CA 91768 909/620-8088

- Koryo Health Foundation 1058 South Vermont Street Los Angeles, CA 90006 213/380-8833

- Northeast Valley Health Corporation 1600 San Fernando Road San Fernando, CA 91340 818/365-8086

- Northeast Valley Health Corporation 12756 Van Nuys Blvd. Pacoima, CA 91331 818/896-0531

- The Venice Family Clinic 604 Rose Avenue Venice, CA 90291 310/392-8630

 

Breast cancer early detection

- Breast Cancer Early Detection Program (BCEDP)/Every Woman Counts is a state-funded program which offers free breast cancer screening services to women 40 and over who qualify. Women who qualify are referred to a local BCEDP provider in their area. Referrals are available in English and Spanish. Call 1-800-511-2300.

- Los Angeles County Services:

Edward R. Roybal Comprehensive Health Center Appointment Line: 323-780-2373 245 S. Fetterly Ave. Los Angeles, CA 90022

Del Monte Comprehensive Health Center Appointment Line: 626-579-8463 10953 Ramona Blvd. Del Monte, CA 91731

H. Claude Hudson Comprehensive Health Center Appointment Line: 213-744-3778 2829 S. Grand Ave. Los Angeles, CA 90007

Harbor-UCLA Medical Center 1000 West Carson Street Torrance, CA 90509 310/222-2345

Hubert Humphrey Comprehensive Health Center Appointment Line: 323-846-4070 5850 S. Main St. Los Angeles, CA 90003

Martin L. King/Drew Medical Center Appointment Line: 310/668-3416 12021 South Wilmington Avenue Los Angeles, CA 90069

LAC & USC Medical Center Appointment Line: 323/226-5112 1200 N. State Street, Trailer 21 Los Angeles, CA 90025

Long Beach Comprehensive Health Center Appointment Line: 562-599-8787 1333 Chestnut Ave. Long Beach, CA 90813

Olive View UCLA Medical Center 14445 Olive View Drive Sylmar, CA 91343 818/364-1555

Valley Care Mid-Valley Comprehensive Health Center Appointment Line: 818-947-4000 7515 Van Nuys Blvd. Van Nuys, CA 91405

 

Other Low-cost & No-cost Breast Screening & Mammography Resources

Center for healthy Aging 310-576-2550 X 323, Santa Monica CA Cancer Detection Program 800-511-2300, 323-549-0800

Daniel Freeman Memorial Hospital Cancer Detection Center 323 N. Prairie Ave. Ste. 160 Inglewood, CA 90301 310/674-7733

Denise Roberts Breast Cancer Foundation Centinela Medical Center 6201 Bristol Parkway Culver City, CA 90230 310/337-0262

Iris Cantor Center/UCLA Breast Imaging Center 200 UCLA Medical Plaza #B-165-10 Los Angeles, CA 90095 310/794-1450

The Los Angeles Free Clinic 8405 Beverly Blvd. Los Angeles, CA 90048 323/653-1990

Mission City Community Health Clinic (low-cost) 15206 Parthenia St. North Hills, CA 91343 818/895-3100 ext. 621

Queen of Angels/Hollywood Presbyterian Medical Center 1300 N. Vermont Avenue Los Angeles, CA 90027 213/913-4817

Santa Monica – UCLA Women’s Imaging Center 1245 16th St. Ste. 110 Santa Monica, CA 90404 310/319-5164

Venice Family Clinic 604 Rose Ave. Venice, CA 90291 310/392-8636

Women’s Breast Center (low-cost) 2901 Wilshire Blvd. Suite 325 Santa Monica, CA 90403 310/829-2931

Associated with Mobile Mammography Screening, Inc. Watts Health Foundation 10300 S. Compton Avenue Los Angeles, CA 90002 213/357-6577

 

Tower Cancer Research Foundation

Free cancer info and resource line that will be available from Tower Cancer Research Foundation. The number is 1-877-752-2120. www.LACancerInfo.org

Community Outreach Pacific Asian Language Services (PALS) PALS offers trained interpreters to limited-English speaking Asian and Pacific Islander clients seeking any spectrum of breast health care. Visit Special Services for Groups or call 213/553-1818.

Black Women for Wellness.   Very helpful in providing information such as where to get free low cost medical care. Black Women for Wellness PO Box 292516 Los Angeles CA 90029 323 290-5955 www.bwwla.com

 

Sister Breast Cancer Survivor Network 116 ½ W. 84th Place Los Angeles CA 90003 323 759-0200

 

2. Partnered for Progress (323) 930-5422

 

Woman’s Breast Center Inner Image Free Mammograms for women 40 and older. A mobile mammogram (RV) and mobile unit (need a room) to provide free mammograms services for women 40 and older. The mobile mammography RV can go to health fairs and community events. The contact is Woman’s Breast Center Inner Images- 310-829-2931 Contact is Anna Triscari. http://www.innerimagesinc.com/pages/events.html

 

Breast cancer information

 

Los Angeles Breast Cancer Alliance   www.labca.org    310-453-1046

Susan G. Komen Foundation       www.komen.org         626-577-2700

Facing Our Risk of Cancer FORCE For men and women with a high risk of cancer, particularly BRCA+. facingourrisk.org or 866-288-7475×717 in Santa Monica

 

Cancer support

West Los Angeles 2716 Ocean Park Blvd # 1040 Santa Monica, CA 90405 (310) 314-2555 www.twc-wla.org

Valley/Ventura 530 Hampshire Road, Westlake Village, CA 91361 Telephone: 805.379.4777 Fax: 805.371.6231 http://www.twcvv.org/

Cancer Match http://www.cancermatch.com/ Online Support and Social and Dating site for those with cancer

Out With Cancer Social Network online Group for Support and Dating for GLT all cancer types http://www.outwithcancer.com/

Premiereoncology.org 2020 Santa Monica Blvd., Ste. 600, Santa Monica CA Robbie Gluckson (Exec. Dir.) 310-570-1474

Northridge Hospital     General Cancer support group     Fran Onderweitzer 818-885-8500 x 4619

Teen Impact Children’s Hospital 323-361-2121

Cancer information

National Cancer Institute   1-800-422-6237   www.cancer.gov

Cancer.Net www.cancer.net

Up to date info provided by Oncology Doctors ASCO

ACS     1-800-227-2345       www.cancer.org

CancerCare   1-800-813-4673   www.cancercare.org

CancerAnswers.org

 

Case Management

LivHome.com 1-323-933-5880 www.livhome.com Ruthie Rosenberg, MSW, CMC
Caregivers groups

LA Co. Caregiver Assoc. 1-800-540-4442 www.losangelescrc.org

Information and Resource Specialist: Diana M. Linares, BSW 818-847-9141 x111 dlinares@picf.org

Kaiser: Time for Me caregiver’s group Faith Jackson; 818-832-7295

Phone support: LA Caregiver Resource Center 818-847-9141 ext. 111 Spanish/English Support groups in Granada Hills (same phone)

Plus classes for caregivers (800) 540-4442 Support for caregivers of older adults w/ chronic condition

 

Cleaning

Cleaning For a Reason is an organization that will connect women currently undergoing chemotherapy to participating cleaning services in their area to provide FREE housecleaning – one time per month for up to four months – while they are undergoing treatment. All a woman must do is sign up and have her doctor fax a note confirming the treatment. Cleaning for a Reason will have a participating cleaning service in her area arrange for the service. This organization serves the entire USA with ~600 current partners..

Further information: http://www.cleaningforareason.org

 

Clinical trial websites

http://emergingmed.com/ 1.877.601.8601       8:30 AM – 6:00 PM EST (M-F)

http://www.cancer.gov/clinicaltrials

 

http://clinicaltrials.gov/

Counseling (low-cost)

California Family Counseling Center, 5445 Balboa Blvd., Encino, CA 91316. Call 818-386-5615. (sliding scale: $20+)

The Community Center of Temple Beth Shalom offers individual counseling by trained para-professionals on a sliding-fee basis. Call 818-762-4817. (sliding scale: $40+)

Counseling West 4419 Van Nuys Blvd. Suite 300 Sherman Oaks, California 91403 phone: (818) 990-9898 OR 20700 Ventura Blvd Suite 210 Woodland Hills, California (818) 990-9898 http://therapists.psychologytoday.com/rms/name/Counseling+West_Sherman+Oaks_California_39900

Center for Individual and Family Counseling 5445 Laurel Canyon Blvd. North Hollywood, CA 91607 818-761-2227 http://www.cifc1.org/index.html

California Lutheran University Community Counseling Center 3259 Pioneer Avenue Thousand Oaks CA 91360 805 493-3390 Sliding scale

Pepperdine Community Counseling Center 16830 Ventura Boulevard Suite 200 Encino CA 91436 818 501-1600 Sliding Scale

 

 

 

County Clinics

 

LAC-Olive View/UCLA Medical Center 14445 Olive View Drive Sylmar 91411 818 364-3432

 

Child & Family Center-Newhall 23504 Lyons Avenue 204 Newhall 91350 661 259-9439

 

El Dorado-Santa Clarita 24625 Arch Street Newhall CA 91411 661 288-2644

Hillview MHC, Inc 12450 Van Nuys Blvd Pacoima CA 91342 818 896-1161

 

San Fernando Valley CM HC 14660 Oxnard Street Van Nuys CA 91405 818 904-3946

 

Santa Clarita Valley Mental Health Center 23501 Cinema Drive Valencia CA 91405 661 288-4800

Cremation

www.sciencecare.com place a donor for research and education to accept donors with contagious diseases such as HIV/AIDs, Hep B/C, Active TB and MRSA. We must also take into consideration decomposition, trauma, extensive orthopedic surgeries and extreme obesity

Dental

Dental Hygiene for the Homebound Brenda Kibbler (818)851-8572

 

Disability services

http://www.allsup.com/contact/contact.aspx Normal Business Hours are 8 a.m. – 5 p.m. (CST), Monday – Friday. Click on “Apply Online” for a free Social Security disability screening. Main Telephone (800) 854-1418 New Disability Claims (800) 279-4357 Customer Information (800) 560-1410   National Headquarters Allsup Inc. 300 Allsup Place Belleville, Illinois 62223 Email Address info@allsupinc.com

James P. Shea, JD, PhD (Social Security disability law) Guest referral. 323/954-9600

Durable power of attorney

Info packets in the drawer Also, http://www.pamf.org/preventive/PAMF_AdvanceDirective.pdf

Eldercare locator

1-800-677-1116 http://www.eldercare.gov/Eldercare.NET/Public/Index.aspx Administration on Aging http://www.aoa.gov/

Energy workers

Ed Sullivan (818)314-9509 edusiw@pacbell.net

Equine therapy

In addition to our own equine tx at El Dustberry Ranch, also see:

www.inbalancewithhorses.com 818.754.4454 Santa Monica Mountains: 25575 Piuma Rd. Calabasas, 91302

An equine-assisted therapy group run by therapists if you know anyone who might be interested. They also offer other types of groups as well as family and individual sessions with horses. Sliding scale.

Exercise

Women only: Team Survivor Fun, free Fitness and Health Programs for Women Living with Cancer! Team Survivor provides a free exercise, health education and support programs for women of all ages and fitness levels with a current or past diagnosis of cancer. email info@teamsurvivor-la.org or call (310) 477-8557

Your Closest YMCAs (*note: they are individually owned and operated and have diff. deals for cancer pts.)

Mid Valley Family YMCA 6901 Lennox Ave, Van Nuys, CA 91405, Telephone: 818-989-3800

East Valley YMCA 5142 Tujunga Ave, North Hollywood, CA 91601, Telephone: 818-763-5126

West Valley Family YMCA 18810 Vanowen Street, Reseda, CA 91335, Telephone: 818-774-2840

Hollywood Wilshire YMCA 1553 Schrader Blvd, Hollywood, CA 90028, Telephone: 323-467-4161

YMCA of Burbank California 321 E Magnolia Blvd, Burbank, CA 91502, Telephone: 818-845-8551

Westside Family YMCA 11311 La Grange Ave, Los Angeles, CA 90025, Telephone: 310-477-1511

Palisades-Malibu YMCA 821 Via De La Paz, Pacific Palisades, CA 90272, Telephone: 310-454-5591

Santa Monica Family YMCA 1332 6th Street, Santa Monica, CA 90401, Telephone: 310-393-2721

YMCA of Metropolitan Los Angeles 625 S New Hampshire Ave, Los Angeles, CA 90005, Telephone: 213-380-6448

Culver-Palms Family YMCA 4500 Sepulveda Blvd, Culver City, CA 90230, Telephone: 310-390-3604

YMCA of Glendale 140 N Louise St, Glendale, CA 91206, Telephone: 818-240-4130

Verdugo Hills Branch YMCA 6840 Foothill Blvd, Tujunga, CA 91042, Telephone: 818-352-3255

Crenshaw Family YMCA 3820 Santa Rosalia Dr, Los Angeles, CA 90008, Telephone: 323-292-9195

North Valley Family YMCA at Porter Ranch 11336 Corbin Ave, Northridge, CA 91326, Telephone: 818-368-3231

Stuart M. Ketchum-Downtown YMCA 401 S Hope St, Los Angeles, CA 90071, Telephone: 213-624-2348

Westchester Family YMCA 8015 S Sepulveda Blvd, Los Angeles, CA 90045, Telephone: 310-670-4316

YMCA of the Foothills 1930 Foothill Blvd, La Canada Flintridge, CA 91011, Telephone: 818-790-0123

Crescenta-Canada Family YMCA 1930 Foothill Blvd, La Canada Flintridge, CA 91011, Telephone: 818-790-0123

Inglewood Family YMCA 333 North Prairie Avenue, Inglewood, CA 90301, Telephone: 310-671-7615

Weingart-East Los Angeles YMCA 2900 Whittier Blvd, Los Angeles, CA 90023, Telephone: 323-260-7005

Financial assistance

Govbenefits.gov   1-800-333-4636 (SSI & Medicaid)

Nat’l Cancer Institute

Government-sponsored programs as well as services supported by nonprofit, national organizations are available for people who do not have health insurance and for those who have insurance but still need financial assistance to cover health care costs. Cancer patients and their families should discuss any concerns about health care costs with their doctor, medical social worker, or the business office of their hospital or clinic. https://cissecure.nci.nih.gov/factsheet/FactSheetSearch8_3.aspx

Beckstrand Cancer Foundation Through three important programs – Individual Patient Assistance (IPA), Psychosocial Pediatric Program and BELIEVE –serves patients who are in the midst of cancer treatment and struggling to cope with day-to-day critical survival needs. IPA requires local residence and matches patients to existing clinical programs. www.beckstrand.org/

• Medical co-payments & health insurance premiums • Prescription reimbursement • Rent & mortgage assistance • Utilities • Auto payments & insurance

Breast Cancer Angels http://breastcancerangels.org/our-programs/ FOOD PROGRAM Breast Cancer Angels provides gift cards to the market of the clients’ choice; the dollar amount depends on family size and need (average of $250 per family per month). The current need is $18,000 monthly. HOUSING NEEDS Breast Cancer Angels assists with emergency housing costs. We may pay the security deposit and the first months rent to assist women who have become homeless due to breast cancer treatment. We are also the only group that assists with monthly (up to $500 per month) housing costs for women in treatment for long-term metastatic breast cancer. Our goal is to keep women from being homeless and alone while they fight their breast cancer battle. MEDICAL CO-PAYS & COBRA COSTS We provide this aid as needed. We do not want to see women lose their insurance in the middle of treatment or not be able to get their prescriptions filled. HOME HEALTH CARE & FINAL EXPENSE We pay for short-term home health care as needed. We also assist with final expenses. SECOND OPINION FUND Jerry & Patti Walsh established a Second Opinion Fund with us, in memory of their daughter, Dayna. We have assisted 18 women in getting an expert second opinion, which improves their chance of survival. SOCIAL WORKER Breast Cancer Angels has a paid social worker who helps our clients find other resources. She also makes home visits to assess client needs. LEGAL ASSISTANCE We now have a pro bono attorney to assist our clients with custody and other legal issues.

Patient Advocate Foundation Insuring equal access to health care for everyone. 800/532-5274     Also, PAF Co-Pay Relief   866-512-3861 Patient Advocate Foundation, please call 1-800-532-5274 or visit our Web site at www.patientadvocate.org or for Co-pay Relief information, call 1-866-512-3861 or e-mail CPR@patientadvocate.org.

Talbert Family Foundation For families with kids only. TFF programs are designed for families with short term financial needs caused by a catastrophic illness that impacts the family’s financial stability. Families are accepted into the program on the condition of their willingness to conduct a fundraising campaign. Grants: www.talbertfamilyfoundation.org/pages/mission.html 818-715-0428

The HealthWell Foundation® Committed to addressing the needs of individuals with insurance who cannot afford their copayments, coinsurance, and premiums for important medical treatments. Our vision is to ensure that no patient goes without health care because they cannot afford it. http://healthwellfoundation.org/   (800) 675-8416 Jewish Free Loan           http://www.jfla.org

Borrowers must be permanent residents of Southern California. In addition, borrowers must have a current California ID or drivers license, have legal residency status (no VISAs) and are required to live at least 6 months in the area to qualify as a permanent resident. “Free loan” means interest free. There are no fees or charges. You repay the amount you borrowed. Maximum loan amt is $3,000.

CancerCare Assist® http://www.cancercare.org/get_help/assistance/cc_financial.php We provide limited grants for certain expenses related to treatment. In order to qualify, you need to provide CancerCare with information about your income, savings and expenses, and in some cases provide invoices for the cost of service. Your healthcare professional must also provide information on your cancer. Download our financial assistance application in English or en español . Please be aware that our grants are not for basic living expenses such as rent, mortgages, utility payments or food. If this is the kind of assistance you need, please call or visit your local United Way for information on local resources that can help. Please contact CancerCare at 1-800-813-HOPE (4673) for more information. http://www.cancercare.org/get_help/assistance/cc_financial.php

Breast Cancer

  • AVONCares: Limited financial assistance for homecare, childcare and transportation. A program in partnership with the Avon Foundation.
  • Linking A.R.M.S.™: Limited financial assistance for hormonal and oral chemotherapy, pain and anti-nausea medication, lymphedema supplies and durable medical equipment. A program in partnership with the Susan G. Komen Breast Cancer Foundation.

All Cancers (excluding the above)

Limited financial assistance for men and women for homecare, childcare, transportation, and pain medication. Includes the Touching Hearts program funded by the Mary Kay Ash Charitable Foundation and San Diego area assistance funded by the WebMD Foundation.

Rise Above It (RAI) http://www.raibenefit.org/index.html.php?nav=home RAI provides financial assistance and clinical trials information to Adolescent and Young Adult (AYA) cancer patients.

Children (ages 18 and under; all cancers)

Limited financial assistance for homecare, childcare, transportation, medication and copays. This program has been funded by many generous individual donors.

In Home Support Services Program that pays for in-home help for Medicare/MediCal? Charlotte Slater (213) 744-3300 or Rebecca Brooks (Deputy Regional Serv Admin) (310)216-2292

 

 

The Leukemia & Lymphoma Society Co-Pay Assistance Program for CML www.lls.org/copay Voice Toll Free: 877-LLS-COPAY (877) 557-2672 Fax Toll Free: 877-COPAY-FAX (877) 267-2932

Food delivery

Project Angel Food   http://www.projectangelfood.org/

323.845.1800       922 Vine Street, Los Angeles, CA 90038-2702

Meals to Heal   www.meals-to-heal.com   888-721-1041

Sova – www.daplus.us 7563 1/2 Beverly Blvd, Los Angeles – (323) 932-1658

Dine to Thrive Dinetothrive.com

Gay and lesbian support

L.A. Gay & Lesbian Center (LAGLC)                         (323) 993-7400 McDonald/Wright Building, 1625 N. Schrader Boulevard, Los Angeles, CA 90028

http://www.outwithcancer.com/   Out With Cancer Social Network online Group for Support and Dating for GLT all cancer types

Gene Testing

Facingourrisk.org

http://www.ascocancerfoundation.org/patient/Learning+About+Cancer/Genetics/Genetic+Testing

Grief support

Our House Grief Support http://www.ourhouse-grief.org/ West Los Angeles 1950 Sawtelle Blvd., Suite 255, Los Angeles, CA 90025 Tel. 310-475-0299 • Fax 310-475-2985

 

San Fernando Valley 21860 Burbank Blvd., Ste 195, Woodland Hills, CA 91367 Tel. 818-222-3344 • Fax 818-222-3392

Valley Beth Shalom 15739 Ventura Boulevard, Encino, California 91436 / 818-788-6000

Assisted Hospice Los Angeles County Group 16909 Parthenia Street, Suite 203 North Hills, CA 91343     Contact: 818-830-5003

Bereavement Counseling Center, Encino   818-509-9701

Jewish Family Services, NoHo   818-984-1380

Beyond Loss, A Bereavement Ministry in partnership with Glendale Adventist Medical Center 1509 Wilson Terrace (chaplain’s office, main floor) Glendale, CA 91206 818-409-800

Jewish Family Service at Valley Storefront 12821 Victory Blvd. North Hollywood, CA 91606 818-984-1380

Widows and widowers support groups for older adults (60+). Before beginning the group, participants must first meet with the social worker leading the group.

Temple Judea Temple Judea Community Outreach Counseling Center 5429 Lindley Ave. Tarzana, CA 91356 818-780-4994 www.templejudea.com/outreach.html E-mail: info@templejudea.com

Widow/Widowers support group and individual counseling provided by volunteers who have been through intensive training and are supervised by licensed professionals.

Dougy.org refers to grief groups across the country

Miss Foundation: providing crisis support and long term aid to families after the death of a child from any cause. MISS also participates in legislative and advocacy issues, community engagement and volunteerism, and culturally competent, multidisciplinary, education opportunities. http://www.missfoundation.org/family/index.html

Online resources: http://www.compassionatefriends.org for loss of a child.

Hair donations for wigs

Pantene beautiful lengths Hair must be at least 8 inches (ponytail) and cannot be bleached or permanently dyed. http://www.beautifullengths.com/en_US/index_home.jsp 1-800-945-7768

Locks of Love Hair must be at least 10 inches (ponytail) and cannot be bleached, but can be permanently dyed. Wigs for children only. (888) 896-1588 http://www.locksoflove.org/donate.html

Also: http://www.acvf.ca/

Home health care

Accredited Home Health Services   310-446-7810   www.Accreditednursing.com

Allpoint http://www.allpointhomehealth.com/ 2211 Corinth Avenue; Suite 305 – Los Angeles, CA 90064 Tel: (310) 441-2009 Fax: (310) 441-2019

American Companion & Homemaker Services   1-800-973-0173

Assisted Healthcare Services       assisted1.com     818-894-8117

Special Care Nursing Services Inc   818-760-0988

Patient Care Services 818-377-7412

Hospice

Assisted Healthcare Services       assisted1.com     818-894-8117

Skirball Hospice       http://www.skirballhospice.org/   818-774-3040

Roze Room Hospice   800-828-9017 www.rozeroomhospice.org

TrinityCare Hospice   818-894-4845   www2.providence.org/TrinityCare/services/Pages/default.aspx

Hospicenet.org

Caringinfo.org

Nhpco.org

Verdugo Hospice Care Ctr (323) 255-8070 4170 Verdugo Road, Los Angeles, CA 90065 http://www.verdugohospice.com/

Los Angeles Hospice 818-785-3970 8121 Van Nuys Blvd #528, Panorama City 91402 http://www.losangeleshospice.com/

Grace Hospice (213) 989-1600 http://gracehospiceinc.com/contact.html

Cedar-Sinai Medical Ctr (310) 423-3277 www.cedars-sinai.edu/Patients/Programs-and-Services/Palliative-Care-Services/

Joie (Joey) Winick, RN 818-788-7684 (ask Nancy)

Insurance

California Office of the Patient Advocate, opa.ca.gov

Foundation for Health Coverage Education, coverageforall.org

No insurance

healthins.org

selfemployedcountry.org

needymeds.com

pparx.org

Kids resources

Kids Can…   Bonnie Moore           818-885-1290

Kids Konnected   800-899-2866   kidskonnected.org

http://www.crystalstairs.org/ Children’s Health and Wellness program helps with health insurance enrollment or with medical referral, please call 323-299-9295.

Legal resources

California Women’s Law Center/Breast Cancer Legal Clinic The Breast Cancer Legal Project provides assistance to women with breast cancer issues such as employment discrimination, insurance, access to health care, debt collection, housing, public benefits advocacy family law issues, wills and powers of attorney. 323/951-1041 (Our volunteer, Brenda, is a lawyer for them!) http://labca.org/info/laresources.php

Cancer Legal Resource Center The Cancer Legal Resource Center is a community-based program providing information and educational outreach on cancer-related issues to people with cancer, cancer survivors, their families and employers. 213/736-1334   (866)999-3752   http://www.disabilityrightslegalcenter.org/

James P. Shea, JD, PhD (Social Security disability law) Guest referral. 323/954-9600

Ross & Morrison (Cancer Advocacy) 310.285.0391 pro-bono   http://www.rossandmorrison.com/community.php

Dept for Healthcare Rights (info about HMOs) California Health Advocates Sponsored by the California Department on Aging, this volunteer program assists with medical billing and will help you compare supplemental and long-term care policies. Legal assistance is also provided.   213/383-4519

Dept of Managed Healthcare Will review Dr.s’ orders to release from the hospital and Pt doesn’t feel ready to leave. 1-888-466-2219

Patient Advocate Foundation Insuring equal access to health care for everyone. 800/532-5274

Legal Aid Foundation of LA   323-801-7991

Leukemia & Lymphoma Society Co-pay Assistance Program 800/955-4572 or 877-557-2672

Housing/Lodging

Joe’s House           www.joeshouse.org You focus on beating cancer, we’ll find you a place to stay. Joe’s House is a nonprofit organization providing a online nation-wide list of places to stay to assist cancer patients and their families find lodging near treatment centers. Online only.

Lingerie

Sara’s Lingerie Boutique           990-1270 Post surgical specialists.

Lymphedema

National Lymphedema Network           800-541-3259 Comprehensive information on the support, education and treatment. http://www.lymphnet.org

Valerie & Linda in Burbank area 8/953-4433 Per Marla Zack:

Active Life Orthotics, Prosthetics & Compression 1808 Verdugo Blvd. #416 Glendale, CA 91208 (818) 495 – 4610 see Patty

Cricket’s Answer FREE wigs, etc incl lymphedema sleeves for needy. (717) 843-7903   Bonnie Julius or (301) 935-4411 Carole Trone http://crickettsanswer.startlogic.com/

Massage

Ed Sullivan               818-314-9509

Frances Savage       818-429-2656

Lorna Sirota             310-396-7814

Mia @ Somatic Space 3460 Ocean View Blvd Suite G Glendale, CA 91208 818-472-8435 http://www.somaticspace.com/

Medical billing service

Be Well   Wendy Temira 310-598-5785 Will manage all of the complicated medical billing reconciliation – making sure that the bills are correct or filing for changes and organizing all the paperwork.

Medical billing service

Govbenefits.gov   1-800-333-4636

Memory Deficits

Circle of Care Leeza’s Place 5000 Van Nuys Boulevard, Suite 110 Sherman Oaks, CA 91403 818-817-3259 • www.leezasplace.org Circle of Care Leeza’s Place is an intimate and safe setting where caregivers and loved ones recently diagnosed with any memory disorder can gather for education and support, and to prepare themselves for the challenging journey ahead.

OPICA Adult Day Services and Counseling Center 11759 Missouri Avenue Los Angeles CA 90025 (310) 478-0226 • fax:(310) 478-2026 Call Ann Galbraith email: opica@opica.org

Offers group for high-functioning guests with memory deficits on Mondays 11-12

Mental health centers

Airport Marina Counseling Center email info@airportmarina.org 7891 La Tijera Blvd. Westchester, CA 90045           (310) 670-1410

 

California Family Counseling Center (CalFam) Phillips Graduate Institute 19900 Plummer St. Chatsworth, California 91311 818.386.5660

 

Catholic Charities Psychological Services- San Fernando Region 21600 Hart Street, Canoga Park, CA 91302             (818) 883-6015

 

Center for Individual and Family Counseling       (818) 761-2227 5445 Laurel Canyon Blvd. North Hollywood, CA 91607

DiDi Hirsh Community Mental Health Center Headquarters 4760 South Sepulveda Blvd. Culver City, CA 90230       (310) 390-6612

Friends of the Family 15350 Sherman Way, Suite 140 Van Nuys, CA 91406   (818) 988-4430

Jewish Family Service- West Los Angeles Counseling Center 2050 South Bundy Drive, Suite #270 West Los Angeles, CA 90025 (310) 820-4111

Maple Counseling Center, 9107 Wilshire Boulevard, Lower Level Beverly Hills, CA 90210                                                   (310) 271-9999

Pepperdine University Community Counseling Center- San Fernando Valley Campus 16830 Ventura Blvd., Suite 216 Encino, CA 91436       (818) 501-1678

Wright Institute of Los Angeles                                 (310) 277-2796 9911 West Pico Blvd., Suite 720 Los Angeles, CA 90035 The Wright Institute also has the Susan Krevoy Eating Disorder Program which offers a low-fee, intensive, out-patient program.

Nutrition

Rachel Beller   http://www.bellernutrition.com/ Beller Nutritional Institute 8730 Wilshire Boulevard, Suite 415 | Beverly Hills, CA 90211 Phone: (310) 855-0555 | Fax: (310) 855-0526

The Cancer Nutrition Center       310/826-2127 The Cancer Nutrition Center is the web site of Carolyn Katzin M.S.P.H., C.N.S. and offers information about cancer and nutrition with links to other nutrition-related web sites.

Lilly Padilla   http://www.lillypadilla.com/ 8730 Wilshire Boulevard, Suite 415 | Beverly Hills, CA 90211 Phone: (310)9025708 (310)4779567 lpadillacreate@gmail.com

Patient Advocacy

Anne Mosell 818-414-0649 Patient Advocate Foundation Insuring equal access to health care for everyone. 800/532-5274

Physical therapy/scar tissue

Susan Layfield 16550 Ventura Blvd. Encino 91436   818-905-1331
Larry Ho Ho Rehab Center 18425 Burbank Blvd, Suite 413, Tarzana, CA 91356 info@horehab.com Phone 818.996.8386 Also check with authorized hospital physical therapy office (may have more visits covered than w/ outside PT.)

Pat @ Norton Eacret Assoc. (St. Joe’s) 8/845-9010

Valerie & Linda (Lymphedemia) 8/953-4433

Prosthetics

Helen’s Room (Daniel Freeman Hospital) A positive appearance and resource center for cancer patients. 310/674-7050 x3930

Me Again Resource center for prosthesis and accessories, including hair alternatives such as wigs, scarves, and turbans. 310/413-9643

Positive Image Center/St. John’s Hospital & Health Center Positive Image Center provides professional services and products that may help patients deal with cosmetic side effects and comfort needs related to their cancer treatment. 310/582-7036

Women’s Health Boutique – serving women in the South Bay Susan Brooks, M.Ed 3738 Sepulveda Blvd., Torrance, CA 90505 310-378-6235     www.whbtorrance.com

 

Intimate Image 22941 Ventura Blvd., Unit M, Woodland Hills, CA 91364 818-876-7333 Online at www.intimateimage.com

Recruiting helpers

lotsahelpinghands.com

Senior care and Alzheimer’s

L.A. City Senior Care Partners   1-800-826-0402 www.seniorcarepartners.org Managed by the Alzheimer’s Assoc.; funded by City dept of Aging

Accent on Seniors   www.accentonseniors.com   888-954-6637

http://www.needymeds.com/ National Institute on Aging (NIA) http://www.nia.nih.gov 800-222-2225

Senior Outreach Services   323-937-6275

Skincare

Lindi Skin   www.lindiskin.com         818-481-5860

Spanish speaking support group

Northridge Hospital     General Cancer support group         Fran Onderweitzer 818-885-8500 x 4619

Tattoos

Sheila May 310-459-8090 (ref: Donna Wells)

Transportation

One Generation Senior Services   818-70502345

Access     800-827-1359

City Ride   818-808-2273

Visually Handicapped Services of the Valley   818-988-1992

ACS 800-227-2345

Tax prep

VITA (Volunteer Income Tax Assistance Porgram) through CSUN 818-677-4519

Wigs and Prostheses

Pamela Breeley         818-209-9552 Hairstylist wants to help cut and color wigs for free

Intimate Image         1-888-848-7965 22941 Ventura Blvd. Woodland Hills (btw Fallbrook & Woodlake) intimateimage.com

Godiva’s Secret   godivassecret.com 22700 Ventura Blvd, Woodland Hills, CA 91364 (818) 591-0883

Isle of Wigs       818-783-8700 20929 Ventura Blvd, Woodland Hills (near DeSoto)

Naimie’s Beauty Center   818-655-9933 12640 Riverside Dr., Valley Village (near Coldwater Cyn)

Sara’s Lingerie Boutique           990-1270 Post surgical specialists.

Cinema Secrets   (818) 846-0579 Contact for having wigs made of own hair (Maurice Stein) 4400 W Riverside Dr Burbank, CA 91505

Bebe Tamberg

It’s Always About the Hair! Diane Martinous, hair & wig designer/stylist 818.399.9940, diane@hairsthething.com

Other online resources

Beyondthecure.org

Teenslivingwithcancer.org

Grouploop.org  Fertilehope.org

http://www.acco.org/

Ulmanfund.org

Youngsurvival.org

 

Cancer.net Patient Information Resources

 

Adenoid Cystic Carcinoma

 

Adenoid Cystic Carcinoma Organization International

P.O. Box 15482 San Diego, CA  92175  http://www.accoi.org

 

National Organization for Rare Disorders (NORD)

55 Kenosia Ave. P.O. Box 1968 Danbury, CT  06813-1968  Toll Free: 800-999-6673 Phone: 203-744-0100 http://www.rarediseases.org

 

Rare Cancer Alliance

1649 N. Pacana Way Green Valley, AZ  85614  http://www.rare-cancer.org

 

Adrenal Gland Tumor

 

Adrenocortical Carcinoma

The University of Texas M.D. Anderson Cancer Center Development Office P.O. Box 4486 TX  http://beverlin.pages.web.com

 

National Organization for Rare Disorders (NORD)

55 Kenosia Ave. P.O. Box 1968 Danbury, CT  06813-1968  Toll Free: 800-999-6673 Phone: 203-744-0100 http://www.rarediseases.org

 

Rare Cancer Alliance

1649 N. Pacana Way Green Valley, AZ  85614  http://www.rare-cancer.org

 

All Cancers

 

Air Charity Network

4300 Westgrove Dr. Addison, TX  75001  Toll Free: 877-858-7788 http://www.aircharitynetwork.org

 

American Association for Cancer Research (AACR)

615 Chestnut St., 17th Fl. Philadelphia, PA  19106  Phone: 215-440-9300 Toll Free: 866-423-3965 http://www.aacr.org

 

American Cancer Society

1599 Clifton Road, NE Atlanta, GA  30329-4251  Phone: 404-320-3333 Toll Free: 800-ACS-2345 TTY: 866-288-4327 http://www.cancer.org

 

American Cancer Society Cancer Action Network (ACS CAN)

1599 Clifton Road, NE Atlanta, GA  30329-4251  Phone: 800-ACS-2345 http://www.acscan.org

 

American College of Surgeons: Cancer Programs

633 N. St. Clair St. Chicago, IL  60611-3211  Phone: 312-202-5009 Toll Free: 800-621-4111 http://www.facs.org/cancer/index.html

 

American Hospice Foundation

2120 L St., NW, Ste. 200 Washington, DC  20037  Phone: 202-223-0204 http://www.americanhospice.org

 

American Institute for Cancer Research (AICR)

1759 R St., NW Washington, DC  20009  Phone: 202-328-7744 Toll Free: 800-843-8114 http://www.aicr.org

 

American Pain Foundation

201 N. Charles St., Ste. 710 Baltimore, MD  21201-4111  Phone: 888-615-PAIN (7246) http://www.painfoundation.org

 

American Psychosocial Oncology Society

2365 Hunters Way Charlottesville, VA  22911  Phone: 434-293-5350 http://www.apos-society.org

 

American Society for Therapeutic Radiology and Oncology (ASTRO)

8280 Willow Oaks Corporate Dr. Ste. 500 Fairfax, VA  22031  Toll Free: 1-800-962-7876 Phone: 703-502-1550 http://www.astro.org/patient

 

American Urological Association

1000 Corporate Blvd. Linthicum, MD  21090  Toll Free: 866-746-4282 Phone: 410-689-3700 http://www.UrologyHealth.org

 

Anderson Network, A Program of Volunteer Services

UT M.D. Anderson Comprehensive Cancer Center 1515 Holcombe Blvd., Unit 216 Houston, TX  77030  Toll Free: 800-345-6324 http://www.mdanderson.org/andersonnetwork

 

Aplastic Anemia and MDS International Foundation

PO Box 3010 Churchton, MD  20733  Toll Free: 800-747-2820 http://www.aplastic.org

 

Arab Community Center for Economic and Social Services (ACCESS)

2651 Saulino Ct. Dearborn, MI  48120  Phone: 313-842-7010 http://www.accesscommunity.org

Asian Health http://www3.baylor.edu/~Charles_Kemp/asian_health.html

 

Association of Cancer Online Resources

173 Duane St., Ste. 3A New York, NY  10013-3334  Phone: 212-226-5525 http://www.acor.org

 

Association of Community Cancer Centers (ACCC)

11600 Nebel St., Ste. 201 Rockville, MD  20852  Phone: 301-984-9496 http://www.accc-cancer.org

 

Association of Oncology Social Work (AOSW)

100 N. 20th St., 4th Fl. Philadelphia, PA  19103  Phone: 215-599-6093 http://www.aosw.org

 

Association of Pediatric Hematology/Oncology Nurses (APHON)

4700 W. Lake Ave. Glenview, IL  60025  Phone: 847-375-4724 http://www.apon.org

 

Cancer Hope Network

Two North Rd., Ste. A Chester, NJ  07930-2308  Phone: 908-879-4039 Toll Free: 877-HOPENET http://www.cancerhopenetwork.org

 

Cancer Information and Counseling Line (CICL)

AMC Cancer Research Center 1600 Pierce St. Denver, CO  80214  Phone: 303-239-3422 Toll Free: 800-525-3777 http://www.amc.org/counseling/CICL.pdf

 

Cancer News on the Net

http://www.cancernews.com

 

Cancer Research Institute

One Exchange Plaza 55 Broadway, Ste. 1802 New York, NY  10006  Phone: 800-99CANCER (800-992-2627) http://www.cancerresearch.org

 

Cancer Survivors Gathering Place

http://www.cancersurvivorsplace.org

 

Cancer Trials Support Unit

CTSU Data Operations Center 1441 W. Montgomery Ave. Rockville, MD  20850-2062  Phone: 888-823-5923 http://www.ctsu.org

 

Cancer.com

P.O. Box 6914 430 Rt. 22 E. Bridgewater, NJ  08807-0914  Phone: 888-227-5624 http://www.cancer.org

 

CancerCare

275 Seventh Ave. New York, NY  10001  Phone: 212-712-8400 Toll Free: 800-813-HOPE (4673) http://www.cancercare.org

 

Cancer411.org

15303 Ventura Blvd. Sherman Oaks , CA  91403  Phone: 877-CANCR411 (877-226-2741) http://www.cancer411.org

 

CancerGuide http://www.cancerguide.org

 

CancerHelp http://www.cancerhelp.8m.com

 

CancerQuest

2017 Rollins Research Center 1510 Clifton Rd., NE Atlanta, GA  30322  http://cancerquest.org

 

CancerSource

263 Summer St., 5th Fl. Boston , MA  02210-1506  http://www.cancersourcemd.com/

 

CaringBridge

1995 Rahn Cliff Ct., Ste. 200 Eagan, MN  55122  Phone: 651-452-7940 http://www.caringbridge.org

 

Center for Mind-Body Medicine

5225 Connecticut Ave., NW Ste. 414 Washington, DC  20015  Phone: 202-966-7338 http://www.cmbm.org

 

Center to Advance Palliative Care (CAPC)

The Mount Sinai School of Medicine 1255 Fifth Ave., Ste. C-2 New York, NY  10029  Phone: 212-201-2670 http://www.capc.org

 

Centers for Disease Control and Prevention (CDC)

1600 Clifton Road Atlanta, GA  30333  Phone: 404-639-3311 Toll Free: 800-311-3435 http://www.cdc.gov

 

Coalition of Cancer Cooperative Groups

1818 Market St., #1100 Philadelphia, PA  19103  Phone: 877-520-4457 http://www.cancertrialshelp.org

 

College of American Pathologists

325 Waukegan Rd. Northfield, IL  60093  Toll Free: 800-323-4040 x7439 http://www.MyBiopsy.org

 

Dia de La Mujer Latina

3750 Venture Dr., Ste. 100A Duluth, GA  30096  Toll Free: 866-546-8573 Phone: 770-814-8790 http://www.diadelamujerlatina.org

 

Exceptional Cancer Patients (ECaP)

522 Jackson Park Dr. Meadville, PA  16335  Phone: 814-337-8192 Fax: 814-337-0699 http://www.ecap-online.org website is temporarily down.

 

FDA Cancer Liaison Program

U.S. Food and Drug Administration (FDA) Office of Special Health Issues 5600 Fishers Ln., HF-12, Rm. 9-49 Rockville, MD  20857  Phone: 301-827-4460 Toll Free: 888-INFOFDA Fax: 301-443-4555 http://www.fda.gov/oashi/cancer/cancer.html

 

Fertile Hope

65 Broadway, Ste. 603 New York, NY  10006  Phone: 888-994-HOPE (4673) http://www.fertilehope.org

 

Gilda’s Club Worldwide

322 Eighth Ave., Ste. 1402 New York, NY  10001  Phone: 888-GILDA-4-U (888-445-3248) Fax: 917-305-0549 http://www.gildasclub.org

 

Hospice Education Institute

Three Unity Square P.O. Box 98 Machiasport, ME  04655-0098  Phone: 207-255-8800 Toll Free: 800-331-1620 Fax: 207-255-8008 http://www.hospiceworld.org

 

International Association for Hospice and Palliative Care (IAHPC)

5535 Memorial Dr., Ste. FPMB 509 Houston, TX  77007  Toll Free: 866-374-2472 Phone: 936-321-9846 http://www.hospicecare.com

 

International Cancer Alliance for Research and Education (ICARE)

4853 Cordell Ave., Ste. 14 Bethesda, MD  20814  Phone: 561-776-6666 Toll Free: 800-ICARE-61 Fax: 561-776-6381 http://www.icare.org

 

International Psycho-Oncology Society

C/O Custom Management Group 2365 Hunters Way Charlottesville, VA  22911  Phone: 434-293-5350 Fax: 434-977-1856 http://www.ipos-society.org

 

Lance Armstrong Foundation

P.O. Box 161150 Austin, TX  78716-1150  Phone: 512-236-8820 Fax: 512-236-8482 www.livestrong.org

 

Lesbian Community Cancer Project (LCCP)

4025 N. Sheridan Rd. Chicago , IL  60613  Phone: 773-561-4662 Fax: 773-388-8887 http://www.lccp.org

 

LIVESTRONG

P.O. Box 161150 Austin, TX  78716-1150  Phone: 512-236-8820 Toll Free: 866-235-7205 Fax: 512-236-8482 http://www.livestrong.org

 

Look Good…Feel Better (LGFB) Phone: 800-395-LOOK (5665) http://www.lookgoodfeelbetter.org

 

MUMS National Parent-to-Parent Network

150 Custer Court Green Bay, WI  54301-1243  Phone: 877-336-5333 Fax: 920-339-0995 http://www.netnet.net/mums

 

National Asian Women’s Health Organization (NAWHO)

One Embarcadero Center, Ste. 500 San Francisco, CA  94111  Phone: 415-773-2838 Fax: 415-773-2872 http://www.nawho.org

 

National Association for Home Care

228 Seventh St., SE Washington, DC  20003  Phone: 202-547-7424 Fax: 202-547-3540 http://www.nahc.org

 

National Cancer Institute (NCI)

Public Inquiries Office Bldg. 31, Rm. 10A31 31 Center Dr., MSC 2580 Bethesda, MD  20892-2580  Phone: 301-435-3848 Toll Free: 800-4-CANCER TTY: 800-332-8615 Fax: 301-402-0894 http://www.cancer.gov

 

National Cancer Survivors Day Foundation

P.O. Box 682285 Franklin, TN  37068  Phone: 615-794-3006 Fax: 615-794-0179 http://www.ncsdf.org

 

National Center for Complementary and Alternative Medicine (NCCAM)

NCCAM Clearinghouse P.O. Box 7923 Gaithersburg, MD  20898-7923  Phone: 301-519-3153 Toll Free: 888-644-6226 Fax: 866-464-3616 http://www.nccam.nih.gov

 

National Coalition for Cancer Survivorship (NCCS)

1010 Wayne Ave., Ste. 770 Silver Spring, MD  20910-5600  Phone: 301-650-9127 Toll Free: 877-NCCS-YES (877-622-7937) Fax: 301-565-9670 http://www.canceradvocacy.org

 

National Comprehensive Cancer Network (NCCN)

500 Old York Rd., Ste. 250 Jenkintown, PA  19046  Phone: 215-690-0300 Fax: 215-690-0280 http://www.nccn.org

 

National Family Caregivers Association (NFCA)

10400 Connecticut Ave., Ste. 500 Kensington, MD  20895-3944  Phone: 301-942-6430 Toll Free: 800-896-3650 Fax: 301-942-2302 http://www.nfcacares.org

 

National Hospice and Palliative Care Organization (NHPCO)

1700 Diagonal Rd., Ste. 625 Alexandria, VA  22314  Phone: 703-837-1500 Toll Free: 800-658-8898 Fax: 703-837-1233 http://www.nhpco.org

 

National Organization for Rare Disorders (NORD)

55 Kenosia Ave. P.O. Box 1968 Danbury, CT  06813-1968  Toll Free: 800-999-6673 Phone: 203-744-0100 http://www.rarediseases.org

 

National Self Help Clearinghouse

Graduate School and University Center of New York 365 Fifth Ave., Ste. 330 New York, NY  10016  Phone: 212-817-1822 http://www.selfhelpweb.org

 

Native American Cancer Research (NACR)

3022 S. Nova Rd. Pine, CO  80470-7830  Phone: 303-838-9359 Fax: 303-838-7629 http://natamcancer.org

 

NOAH: New York Online Access to Health

http://www.noah-health.org

 

Nueva Vida, Inc.

2000 P St., NW, Ste. 740 Washington, DC  20036  Phone: 202-223-9100 Fax: 202-223-9600 http://www.nueva-vida.org

 

Office of Cancer Survivorship

NCI Public Inquiries Office Office of Cancer Survivorship 6116 Executive Blvd., Ste. 404 Bethesda, MD  20892-2580  Phone: 301-402-2964 Fax: 301-594-5070 http://dccps.nci.nih.gov/ocs

 

Office of Minority Health (OMH)

P.O. Box 37337 Washington, DC  20013-7337  Phone: 800-444-6472 Fax: 301-215-2160 http://www.oshrc.gov

 

OncoLink

Abramson Cancer Center of the University of Pennsylvania 3400 Spruce St.- 2 Donner Philadelphia, PA  19104-4283  Phone: 215-662-7979 Fax: 215-349-5325 http://www.oncolink.upenn.edu

 

Oncology Nursing Society (ONS)

125 Enterprise Dr. Pittsburgh, PA  15275  Phone: 412-859-6100 Toll Free: 866-257-4ONS (4667) Fax: 412-859-6162 http://www.ons.org

 

Partnership for Prescription Assistance

1100 15th St., NW Washington, DC  20005  Phone: 888-4PPA-NOW (477-2669) http://www.pparx.org

 

Patient Advocate Foundation (PAF)

700 Thimble Shoals Blvd., Ste. 200 Newport News, VA  23606  Phone: 757-873-6668 Toll Free: 800-532-5274 Fax: 757-873-8999 http://www.patientadvocate.org

 

Patient Resource Publishing

6531 North National Dr. Parkville, MO  64152  Phone: 816- 584-8227 http://www.patientresource.net

 

Pregnant with Cancer Network

P.O. Box 1243 Buffalo, NY  14220  Toll Free: 800-743-4471 www.pregnantwithcancer.org

 

Prevent Cancer Foundation

1600 Duke St. Alexandria, VA  22314  Phone: 703-836-4412 Toll Free: 800-227-2732 http://www.preventcancer.org

 

R.A. Bloch Cancer Foundation, Inc.

One H&R Block Way Kansas City, MO  64105  Toll Free: 1-800-433-0464 Phone: 816-854-5050 Fax: 816-854-8024 http://www.blochcancer.org

 

Rare Cancer Alliance

1649 N. Pacana Way Green Valley, AZ  85614  http://www.rare-cancer.org

 

Research Advocacy Network

309 E. Rand Rd., Ste. 175 Arlington Heights, IL  60004  Phone: 877-276-2187 http://www.researchadvocacy.org

 

Stand Up 2 Cancer

http://www.standup2cancer.org

 

SuperSibs

4300 Lincoln Ave., Ste. I Rolling Meadows, IL  60008  Phone: 847-705-SIBS (7427) Toll Free: 866-444-SIBS (7427) Fax: 847-776-7084 http://www.supersibs.org

 

Teens Living With Cancer

Melissa’s Living Legacy Foundation 245 Citation Dr. Henrietta, NY  14467  Phone: 585-334-0858 Fax: 585-334-0858 http://www.teenslivingwithcancer.org

 

The Cancer Research Foundation

135 S. LaSalle Street Suite 2020 Chicago, IL  60690  Phone: 312-630-0055 Fax: 312-630-0075 http://www.cancerresearchfdn.org/

 

The Intercultural Cancer Council (ICC)

665 Travis, Ste. 322 Houston, TX  77030  Phone: 713-798-4617 Fax: 713-798-6222 http://iccnetwork.org

 

The Mautner Project

1707 L St., Ste. 500 Washington, DC  20036  Phone: 202-332-5536 Toll Free: 866-MAUTNER (866-628-8637) Fax: 202-332-0662 http://www.mautnerproject.org

 

The National Lesbian, Gay, Bisexual, Transgender Cancer Network

136 West 16 Street, #1E New York, NY  10011  Phone: 212-675-2633 http://www.cancer-network.org

 

The National Library of Medicine

8600 Rockville Pike Bethesda, MD  20894  Phone: 301-594-5983 Toll Free: 888-FIND-NLM Fax: 301-402-1384 http://www.nlm.nih.gov

 

The Oley Foundation

214 Hun Memorial, A-28 Albany Medical Center Albany, NY  12208-3478  Phone: 518-262-5079 Toll Free: 800-776-OLEY (6539) Fax: (518) 262-5528 http://www.oley.org

 

The Ulman Cancer Fund for Young Adults

PMB 505 4725 Dorsey Hall Dr., Ste. A Ellicott City, MD  21042  Phone: 410-964-0202 Toll Free: 888-393-FUND (3863) Fax: 410-964-0402 http://www.ulmanfund.org

 

The Wellness Community

919 18th St., NW, Ste. 54 Washington, DC  20006  Phone: 202-659-9709 Toll Free: 888-793-WELL (9355) Fax: 202-659-9301 http://www.thewellnesscommunity.org

 

Vital Options and The Group Room Cancer Radio Show

4419 Coldwater Canyon Ave., Ste. I Studio City, CA  91604-1479  Phone: 818-508-5657 Toll Free: 800-GRP-ROOM (800-477-7666) Fax: 818-788-5260 http://www.vitaloptions.org

 

Your Disease Risk

Harvard Center For Cancer Prevention 677 Huntington Ave., Landmark 3 East Boston, MA  02115  Phone: 617-998-1034 Fax: 617-432-1722 http://www.yourdiseaserisk.harvard.edu

 

Amyloidosis

 

Amyloidosis Foundation

7151 N. Main St., Ste. 208 Clarkston, MI  48346  Toll Free: 877-269-5463 Phone: 248-922-9610 http://www.amyloidosisresearchfoundation.org

 

Amyloidosis Support Groups, Inc.

232 Orchard Dr. Wood Dale, IL  60191  Toll Free: 866-404-7539 Phone: 630-350-7539 http://www.amyloidosissupport.com

 

Amyloidosis Support Network

1490 Herndon Ln. Marietta, GA  30062  Toll Free: 800-689-1239 Phone: 770-977-1500 http://www.amyloidosis.org

 

National Organization for Rare Disorders (NORD)

55 Kenosia Ave. P.O. Box 1968 Danbury, CT  06813-1968  Toll Free: 800-999-6673 Phone: 203-744-0100 http://www.rarediseases.org

 

Rare Cancer Alliance

1649 N. Pacana Way Green Valley, AZ  85614  http://www.rare-cancer.org

 

Bladder Cancer

 

American Urological Association

1000 Corporate Blvd. Linthicum, MD  21090  Toll Free: 866-746-4282 Phone: 410-689-3700 http://www.UrologyHealth.org

 

Bladder Cancer Advocacy Network

4813 St. Elmo Ave. Bethesda, MD  20814  Phone: 301-215-9099 http://www.bcan.org

 

Brain Tumor

 

American Brain Tumor Association (ABTA)

2720 River Rd. Des Plaines, IL  60018  Phone: 847-827-9910 Toll Free: 800-886-2282 http://www.abta.org

 

Brain Tumor Society (BTS)

124 Watertown St., Ste. 3-H Watertown , MA  Phone: 617-924-9997 Toll Free: 800-770-TBTS (8287) Fax: 617-924-9998 http://www.tbts.org

 

Children’s Brain Tumor Foundation

274 Madison Ave., Ste. 1004 New York, NY  10016  Phone: 212-448-9494 http://www.cbtf.org

 

National Brain Tumor Foundation (NBTF)

22 Battery St., Ste. 612 San Francisco, CA  94111  Phone: 415-834-9970 Toll Free: 800-934-CURE (2873) Fax: 415-834-9980 http://www.braintumor.org

 

The Brain Tumor Foundation

1350 Avenue of the Americas, Ste. 1200 New York, NY  10019  Phone: 212-265-2401 Fax: 212-489-0203 http://www.braintumorfoundation.org

 

The Brain Tumor Society

124 Watertown Street Suite 3-H Watertown, MA  02472  Phone: 800-770-TBTS Fax: 617-924-9998 http://www.tbts.org

 

The Childhood Brain Tumor Foundation

20312 Watkins Meadow Dr. Germantown, MD  20876  Phone: 301-515-2900 Toll Free: 877-217-4166 http://www.childhoodbraintumor.org

 

Breast Cancer

 

American Society of Breast Disease

P.O. Box 140186 Dallas, TX  75214  Phone: 214-368-6836 http://www.asbd.org

 

Breast Cancer Network of Strength

212 W. Van Buren, Ste. 1000 Chicago, IL  60607  Phone: 312-986-8338 Toll Free: 800-221-2141 Spanish: 800-986-9505 Fax: 312-294-8597 http://www.networkofstrength.org

 

BreastCancer.Net

http://www.breastcancer.net

 

Breastcancer.org

111 Forrest Ave., 1R Narberth, PA  19072  http://www.breastcancer.org

 

BreastCancerADVISORS.org

229 S. 18th St. Philadelphia, PA  19103  http://www.breastcanceradvisors.org website is temporarily unavailable.

 

California Medical Review, Inc. (now Lumetra)

Mammography Campaign One Sansome Street Suite 600 San Francisco, CA  94104-4448  Phone: 415-677-2000 Fax: 415-677-2195 http://www.lumetra.com/healthplans/bcs/index.asp

 

Encore Plus of the YWCA of the USA

Phone: 800-95-EPLUS http://www.ywca.org/

 

FORCE: Facing Our Risk of Cancer Empowered

16057 Tampa Palms Blvd. W, PMB #373 Tampa , FL  33647  Phone: 954-255-8732 Toll Free: 866-288-RISK (7475) http://www.facingourrisk.org

 

HER2 Support Group Org.

6973 Mimosa Dr. Carlsbad, CA  92009  Phone: 760-602-9178 http://www.her2support.org

 

Inflammatory Breast Cancer

http://www.ibcsupport.org

 

Inflammatory Breast Cancer Research Foundation

321 High School Rd., NE, Ste. D3, #149 Bainbridge Island, WA  98110  Phone: 877-STOP-IBC (877-786-7422) http://www.ibcresearch.org

 

John W. Nick Foundation, Inc.

P.O. Box 4133 Vero Beach, FL  32963  Phone: 772-589-1440 http://www.johnwnickfoundation.org

 

Living Beyond Breast Cancer

10 E. Athens Ave., Ste. 204 Ardmore, PA  19003  Phone: 610-645-4567 Toll Free: 888-753-5222 Fax: 610-645-4573 http://www.lbbc.org

 

Mothers Supporting Daughters with Breast Cancer

c/o Charmayne Dierker, President 21710 Bayshore Rd. Chestertown, MD  21620-4401  Phone: 410-778-1982 http://www.mothersdaughters.org

 

National Breast and Cervical Cancer Early Detection Program

Centers for Disease Control and Prevention Division of Cancer Prevention and Control 4770 Buford Hwy., NE Atlanta, GA  30341-3717  Toll Free: 800-292-4636 http://www.cdc.gov/cancer/index.htm

 

National Breast Cancer Awareness Month

Phone: 312-596-3548 http://www.nbcam.org

 

National Breast Cancer Coalition (NBCC)

1101 17th St., NW, Ste. 1300 Washington, DC  20036  Phone: 202-296-7477 Toll Free: 800-622-2838 Fax: 202-265-6854 http://www.stopbreastcancer.org

 

National Lymphedema Network(NLN)

Latham Square 1611 Telegraph Ave., Ste. 111 Oakland, CA  94612  Toll Free: 800-541-3259 Phone: 510-208-3200 http://www.lymphnet.org

 

SHARE: Self-help for Women with Breast or Ovarian Cancer

1501 Broadway, Ste. 704a New York, NY  10036  Phone: 212-719-0364 Toll Free: 866-891-2392 http://www.sharecancersupport.org

 

Sisters Network, Inc.

8787 Woodway Dr., Ste. 4206 Houston, TX  77063  Phone: 713-781-0255 Toll Free: 866-781-1808 Fax: 713-780-8998 http://www.sistersnetworkinc.org

 

Susan G. Komen for the Cure

5005 LBJ Freeway Ste. 250 Dallas, TX  75244  Phone: 972-855-1600 Toll Free: 800-I’M-AWARE (800-462-9273) http://www.komen.org

 

Young Survival Coalition

61 Broadway, Ste. 2235 New York, NY  10006  Toll Free: 1-800-972-1011 Phone: 646-257-3000 http://www.youngsurvival.org

 

Breast, Inflammatory Cancer

 

BreastCancerADVISORS.org

229 S. 18th St. Philadelphia, PA  19103  http://www.breastcanceradvisors.org temporarily unavailable

 

National Breast and Cervical Cancer Early Detection Program

Centers for Disease Control and Prevention Division of Cancer Prevention and Control 4770 Buford Hwy., NE Atlanta, GA  30341-3717  Toll Free: 800-292-4636 http://www.cdc.gov/cancer/index.htm

 

National Breast Cancer Awareness Month

Phone: 312-596-3548 http://www.nbcam.org

 

National Organization for Rare Disorders (NORD)

55 Kenosia Ave. P.O. Box 1968 Danbury, CT  06813-1968  Toll Free: 800-999-6673 Phone: 203-744-0100 http://www.rarediseases.org

 

Rare Cancer Alliance

1649 N. Pacana Way Green Valley, AZ  85614  http://www.rare-cancer.org

 

Susan G. Komen for the Cure

5005 LBJ Freeway Ste. 250 Dallas, TX  75244  Phone: 972-855-1600 Toll Free: 800-I’M-AWARE (800-462-9273) http://www.komen.org

 

Breast, Male Cancer

 

BreastCancerADVISORS.org

229 S. 18th St. Philadelphia, PA  19103  http://www.breastcanceradvisors.org temporarily unavailable.

 

John W. Nick Foundation, Inc.

P.O. Box 4133 Vero Beach, FL  32963  Phone: 772-589-1440 http://www.johnwnickfoundation.org

 

National Breast Cancer Awareness Month

Phone: 312-596-3548 http://www.nbcam.org

 

National Organization for Rare Disorders (NORD)

55 Kenosia Ave. P.O. Box 1968 Danbury, CT  06813-1968  Toll Free: 800-999-6673 Phone: 203-744-0100 http://www.rarediseases.org

 

Rare Cancer Alliance

1649 N. Pacana Way Green Valley, AZ  85614  http://www.rare-cancer.org

 

Breast, Metaplastic Cancer

 

BreastCancerADVISORS.org

229 S. 18th St. Philadelphia, PA  19103  http://www.breastcanceradvisors.org temporarily unavailable.

 

National Breast and Cervical Cancer Early Detection Program

Centers for Disease Control and Prevention Division of Cancer Prevention and Control 4770 Buford Hwy., NE Atlanta, GA  30341-3717  Toll Free: 800-292-4636 http://www.cdc.gov/cancer/index.htm

 

National Breast Cancer Awareness Month

Phone: 312-596-3548 http://www.nbcam.org

 

National Organization for Rare Disorders (NORD)

55 Kenosia Ave. P.O. Box 1968 Danbury, CT  06813-1968  Toll Free: 800-999-6673 Phone: 203-744-0100 http://www.rarediseases.org

 

Rare Cancer Alliance

1649 N. Pacana Way Green Valley, AZ  85614  http://www.rare-cancer.org

 

Susan G. Komen for the Cure

5005 LBJ Freeway Ste. 250 Dallas, TX  75244  Phone: 972-855-1600 Toll Free: 800-I’M-AWARE (800-462-9273) http://www.komen.org

 

Carcinoid Tumor

 

Rare Cancer Alliance

1649 N. Pacana Way Green Valley, AZ  85614  http://www.rare-cancer.org

 

The Carcinoid Cancer Foundation, Inc.

333 Mamaroneck Ave., #492 White Plains, NY  10605  Phone: 914-683-1001 Toll Free: 888-722-3132 Fax: 914-683-0183 http://www.carcinoid.org

 

Cervical Cancer

 

Encore Plus of the YWCA of the USA

Phone: 800-95-EPLUS http://www.ywca.org/

 

Gynecologic Cancer Foundation (GCF)

230 W Monroe, Ste. 2528 Chicago, IL  60606  Phone: 312-578-1439 Toll Free: 800-444-4441 Fax: 312-578-9769 http://www.thegcf.org

 

National Breast and Cervical Cancer Early Detection Program

Centers for Disease Control and Prevention Division of Cancer Prevention and Control 4770 Buford Hwy., NE Atlanta, GA  30341-3717  Toll Free: 800-292-4636 http://www.cdc.gov/cancer/index.htm

 

National Cervical Cancer Coalition (NCCC)

7247 Hayvenhurst Ave., Ste. A-7 Van Nuys, CA  91406  Toll Free: 800-685-5531 Phone: 818-909-3849 http://www.nccc-online.org

 

Childhood Cancer

 

Alliance for Childhood Cancer

1900 Duke St., Ste. 200 Alexandria, VA  22314  Phone: 703-299-1050 Fax: 703-684-8364 http://allianceforchildhoodcancer.org/

 

American Brain Tumor Association (ABTA)

2720 River Rd. Des Plaines, IL  60018  Phone: 847-827-9910 Toll Free: 800-886-2282 http://www.abta.org

 

Beyond the Cure

1 South Memorial Dr., Ste. 800 St. Louis, MO  63102  Toll Free: 800-532-6459 http://www.beyondthecure.org/

 

Candlelighters Childhood Cancer Foundation

P.O. Box 498 Kensington, MD  20895-0498  Phone: 301-962-3520 Toll Free: 800-366-2223 Fax: 301-962-3521 http://www.acco.org/

 

Childhood Leukemia Center

http://www.patientcenters.com/leukemia

 

Children’s Brain Tumor Foundation

274 Madison Ave., Ste. 1004 New York, NY  10016  Phone: 212-448-9494 http://www.cbtf.org

 

Children’s Hospice International (CHI)

1101 King St., Ste. 360 Alexandria, VA  22314  Toll Free: 800-243-4453 Phone: 703-684-0330 http://www.chionline.org

 

CureSearch

National Childhood Cancer Foundation Children’s Oncology Group 4600 East West Highway, #600 Bethesda, MD  20814-3457  Phone: 800-458-NCCF (6223) Fax: 626-447-6359 http://www.curesearch.org

 

Make-A-Wish Foundation

3550 N Central Ave., Ste. 300 Phoenix, AZ  85012-2127  Phone: 602-279-9474 Toll Free: 800-722-WISH (9474) Fax: 602-279-0855 http://www.wish.org

 

National Childhood Cancer Foundation

P.O. Box 60012 440 E Huntington Dr. Arcadia, CA  91006-6012  Phone: 626-447-1674 Toll Free: 800-458-6223 Fax: 626-447-6359 http://www.nccf.org

 

National Children’s Cancer Society

1 South Memorial Dr., Ste. 800 St. Louis, MO  63102  Toll Free: 800-532-6459 Phone: 314-241-1600 http://www.nationalchildrenscancersociety.org

 

Neuroblastoma Children’s Cancer Society

P.O. Box 957672 Hoffman Estates, IL  60195  Phone: 847-605-1245 Toll Free: 800-532-5162 Fax: 847-605-0705 http://www.neuroblastomacancer.org

 

Outlook: Life Beyond Childhood Cancer

http://www.outlook-life.org

 

Starlight Starbright Children’s Foundation

5757 Wilshire Blvd., Ste. M100 Los Angeles, CA  90036  Phone: 310-479-1212 http://www.slsb.org

 

The Childhood Brain Tumor Foundation

20312 Watkins Meadow Dr. Germantown, MD  20876  Phone: 301-515-2900 Toll Free: 877-217-4166 http://www.childhoodbraintumor.org

 

The Children’s Cause

1010 Wayne Ave., Ste. 770 Silver Spring, MD  20910  Phone: 301-562-2765 Fax: 301-565-9670 http://www.childrenscause.org

 

The STARBRIGHT Foundation

1850 Sawtelle Blvd., Ste. 450 Los Angeles, CA  90025  Phone: 310-479-1212 Toll Free: 800-315-2580 Fax: 310-479-1235 http://www.starbright.org

 

Colorectal Cancer

 

Colon Cancer Alliance

5411 N. University Dr., Ste. 202 Coral Springs, FL  33067  Toll Free: 877-422-2030 Phone: 212-627-7457 http://www.ccalliance.org

 

Colorectal Cancer Association of Canada

180 Bloor Street West Suite 904 Toronto, Ontario,  M5S 2V6  Phone: 888-318-9442 Fax: 416-920-3004 http://www.colorectal-cancer.ca/

 

Colorectal Cancer Coalition (C3)

1225 King St., 2nd Fl. Alexandria, VA  22314  Toll Free: 877-427-2111 Phone: 703-548-1225 http://www.fightcolorectalcancer.org

 

The Susan Cohan Kasdas Colon Cancer Foundation

201 North Charles Street, Suite 2404 Baltimore, MD  21201  Phone: (410) 244-1778 http://www.coloncancerfoundation.org

 

Desmoplastic Infantile Ganglioma

 

Rare Cancer Alliance

1649 N. Pacana Way Green Valley, AZ  85614  http://www.rare-cancer.org

 

Endocrine Tumor

 

National Organization for Rare Disorders (NORD)

55 Kenosia Ave. P.O. Box 1968 Danbury, CT  06813-1968  Toll Free: 800-999-6673 Phone: 203-744-0100 http://www.rarediseases.org

 

Rare Cancer Alliance

1649 N. Pacana Way Green Valley, AZ  85614  http://www.rare-cancer.org

 

Ependymoma

 

National Organization for Rare Disorders (NORD)

55 Kenosia Ave. P.O. Box 1968 Danbury, CT  06813-1968  Toll Free: 800-999-6673 Phone: 203-744-0100 http://www.rarediseases.org

 

Rare Cancer Alliance

1649 N. Pacana Way Green Valley, AZ  85614  http://www.rare-cancer.org

 

Esophageal Cancer

 

Cathy’s EC Café

http://www.eccafe.org

 

Eye Cancer

 

The Eye Cancer Network

Eye Care Foundation 115 E 61st St. New York, NY  10021  Phone: 212-832-8170 http://www.eyecancer.com

 

Eyelid Cancer

 

National Organization for Rare Disorders (NORD)

55 Kenosia Ave. P.O. Box 1968 Danbury, CT  06813-1968  Toll Free: 800-999-6673 Phone: 203-744-0100 http://www.rarediseases.org

Rare Cancer Alliance

1649 N. Pacana Way Green Valley, AZ  85614  http://www.rare-cancer.org

 

Fallopian Tube Cancer

 

National Organization for Rare Disorders (NORD)

55 Kenosia Ave. P.O. Box 1968 Danbury, CT  06813-1968  Toll Free: 800-999-6673 Phone: 203-744-0100 http://www.rarediseases.org

 

Rare Cancer Alliance

1649 N. Pacana Way Green Valley, AZ  85614  http://www.rare-cancer.org

 

Gallbladder Cancer

 

Rare Cancer Alliance

1649 N. Pacana Way Green Valley, AZ  85614  http://www.rare-cancer.org

 

Gastrointestinal Stromal Tumor (GIST)

 

GIST Support International

12 Bomaca Dr. Doylestown, PA  18901  Phone: 215-340-9374 Fax: 215-340-1630 http://www.gistsupport.org

 

National Organization for Rare Disorders (NORD)

55 Kenosia Ave. P.O. Box 1968 Danbury, CT  06813-1968  Toll Free: 800-999-6673 Phone: 203-744-0100 http://www.rarediseases.org

 

Rare Cancer Alliance

1649 N. Pacana Way Green Valley, AZ  85614  http://www.rare-cancer.org

 

The Life Raft Group (LRG)

40 Galesi Dr., Ste. 19 Wayne, NJ  07470  Phone: 973-837-9092 Fax: 973-837-9095 http://www.liferaftgroup.org

 

Germ Cell Tumors

 

National Organization for Rare Disorders (NORD)

55 Kenosia Ave. P.O. Box 1968 Danbury, CT  06813-1968  Toll Free: 800-999-6673 Phone: 203-744-0100 http://www.rarediseases.org

 

Rare Cancer Alliance

1649 N. Pacana Way Green Valley, AZ  85614  http://www.rare-cancer.org

 

Gestational Trophoblastic Tumor

 

National Organization for Rare Disorders (NORD)

55 Kenosia Ave. P.O. Box 1968 Danbury, CT  06813-1968  Toll Free: 800-999-6673 Phone: 203-744-0100 http://www.rarediseases.org

 

Rare Cancer Alliance

1649 N. Pacana Way Green Valley, AZ  85614  http://www.rare-cancer.org

 

Head and Neck Cancer

 

Support for People with Oral, Head, and Neck Cancer (SPOHNC)

P.O. Box 53 Locust Valley, NY  11560-0053  Phone: 516-759-5333 Toll Free: 800-377-0928 Fax: 516-671-8794 http://www.spohnc.org

 

The Oral Cancer Foundation

3419 Via Lido, #205 Newport Beach, CA  92663  Phone: 949-646-8000 www.oralcancerfoundation.org

 

HIV/AIDS-Related Cancer

 

Rare Cancer Alliance

1649 N. Pacana Way Green Valley, AZ  85614  http://www.rare-cancer.org

 

Islet Cell Tumors

 

National Organization for Rare Disorders (NORD)

55 Kenosia Ave. P.O. Box 1968 Danbury, CT  06813-1968  Toll Free: 800-999-6673 Phone: 203-744-0100 http://www.rarediseases.org

 

Rare Cancer Alliance

1649 N. Pacana Way Green Valley, AZ  85614  http://www.rare-cancer.org

 

Kidney Cancer

 

Action to Cure Kidney Cancer

150 West 75th St., Ste. 246 New York, NY  10023  Phone: 212-615-6404 http://www.ackc.org

 

American Urological Association

1000 Corporate Blvd. Linthicum, MD  21090  Toll Free: 866-746-4282 Phone: 410-689-3700 http://www.UrologyHealth.org

 

Kidney Cancer Association

1234 Sherman Ave., Ste. 203 Evanston, IL  60202  Toll Free: 800-850-9132 Phone: 847-332-1051 http://www.kidneycancer.org

 

VHL Family Alliance

2001 Beacon St., Ste. 208 Boston, MA  02135-7787  Toll Free: 800-767-4845 Phone: 617-277-5667 http://www.vhl.org

 

Lacrimal Gland Tumor

 

National Organization for Rare Disorders (NORD)

55 Kenosia Ave. P.O. Box 1968 Danbury, CT  06813-1968  Toll Free: 800-999-6673 Phone: 203-744-0100 http://www.rarediseases.org

 

Rare Cancer Alliance

1649 N. Pacana Way Green Valley, AZ  85614  http://www.rare-cancer.org

 

Laryngeal and Hypopharyngeal

 

The Oral Cancer Foundation

3419 Via Lido, #205 Newport Beach, CA  92663  Phone: 949-646-8000 www.oralcancerfoundation.org

 

Leukemia, Acute Lymphoblastic (ALL)

 

American Society for Blood and Marrow Transplantation

85 W Algonquin Rd., Ste. 550 Arlington Heights, IL  60005  Phone: 847-427-0224 Fax: 847-427-9656 http://www.asbmt.org

 

Blood and Marrow Transplant Information Network

2310 Skokie Valley Rd., Ste. 104 Highland Park, IL  60035  Phone: 847-433-3313 Toll Free: 888-597-7674 Fax: 847-433-4599 http://bmtinfonet.org/

 

Childhood Leukemia Center

http://www.patientcenters.com/leukemia

 

Leukemia Research Foundation

2700 Patriot Blvd., Ste. 100 Glenview, IL  60026-8021  Phone: 847-424-0600 Fax: 847-424-0606 http://www.leukemia-research.org

 

National Bone Marrow Transplant Link

20411 West 12 Mile Rd., Ste. 108 Southfield, MI  48076  Phone: 248-358-1886 Toll Free: 800-LINK-BMT (800-546-5268) Fax: 248-358-1889 http://www.nbmtlink.org

 

National Marrow Donor Program

3001 Broadway St., NE, Ste. 100 Minneapolis, MN  55413-1753  Phone: 800-MARROW2 (800-627-7692) Pat. Adv.: 888-999-6743 http://www.marrow.org

 

The Leukemia and Lymphoma Society

1311 Mamaroneck Ave. White Plains, NY  10605  Phone: 914-949-5213 Toll Free: 800-955-4LSA (4572) http://www.lls.org

 

Leukemia, Acute Myeloid (AML)

 

American Society for Blood and Marrow Transplantation

85 W Algonquin Rd., Ste. 550 Arlington Heights, IL  60005  Phone: 847-427-0224 Fax: 847-427-9656 http://www.asbmt.org

 

Blood and Marrow Transplant Information Network

2310 Skokie Valley Rd., Ste. 104 Highland Park, IL  60035  Phone: 847-433-3313 Toll Free: 888-597-7674 Fax: 847-433-4599 http://bmtinfonet.org/
Childhood Leukemia Center

http://www.patientcenters.com/leukemia

 

Leukemia Research Foundation

2700 Patriot Blvd., Ste. 100 Glenview, IL  60026-8021  Phone: 847-424-0600 Fax: 847-424-0606 http://www.leukemia-research.org

 

National Bone Marrow Transplant Link

20411 West 12 Mile Rd., Ste. 108 Southfield, MI  48076  Phone: 248-358-1886 Toll Free: 800-LINK-BMT (800-546-5268) Fax: 248-358-1889 http://www.nbmtlink.org

 

National Marrow Donor Program

3001 Broadway St., NE, Ste. 100 Minneapolis, MN  55413-1753  Phone: 800-MARROW2 (800-627-7692) Pat. Adv.: 888-999-6743 http://www.marrow.org

 

The Leukemia and Lymphoma Society

1311 Mamaroneck Ave. White Plains, NY  10605  Phone: 914-949-5213 Toll Free: 800-955-4LSA (4572) http://www.lls.org

 

The Myelodysplastic Syndromes Foundation

P.O. Box 353 36 Front Street Crosswicks, NJ  08515  Phone: 800-MDS-0839 (800-637-0839) Fax: 609-298-0590 http://www.mds-foundation.org

 

American Society for Blood and Marrow Transplantation

85 W Algonquin Rd., Ste. 550 Arlington Heights, IL  60005  Phone: 847-427-0224 Fax: 847-427-9656 http://www.asbmt.org

 

Blood and Marrow Transplant Information Network

2310 Skokie Valley Rd., Ste. 104 Highland Park, IL  60035  Phone: 847-433-3313 Toll Free: 888-597-7674 Fax: 847-433-4599 http://bmtinfonet.org/

 

Childhood Leukemia Center

http://www.patientcenters.com/leukemia

 

Leukemia Research Foundation

2700 Patriot Blvd., Ste. 100 Glenview, IL  60026-8021  Phone: 847-424-0600 Fax: 847-424-0606 http://www.leukemia-research.org

 

National Bone Marrow Transplant Link

20411 West 12 Mile Rd., Ste. 108 Southfield, MI  48076  Phone: 248-358-1886 Toll Free: 800-LINK-BMT (800-546-5268) Fax: 248-358-1889 http://www.nbmtlink.org

 

National Marrow Donor Program

3001 Broadway St., NE, Ste. 100 Minneapolis, MN  55413-1753  Phone: 800-MARROW2 (800-627-7692) Pat. Adv.: 888-999-6743 http://www.marrow.org

 

The Leukemia and Lymphoma Society

1311 Mamaroneck Ave. White Plains, NY  10605  Phone: 914-949-5213 Toll Free: 800-955-4LSA (4572) http://www.lls.org

 

The Myelodysplastic Syndromes Foundation

P.O. Box 353 36 Front Street Crosswicks, NJ  08515  Phone: 800-MDS-0839 (800-637-0839) Fax: 609-298-0590 http://www.mds-foundation.org

 

Leukemia, B-Cell

 

American Society for Blood and Marrow Transplantation

85 W Algonquin Rd., Ste. 550 Arlington Heights, IL  60005  Phone: 847-427-0224 Fax: 847-427-9656 http://www.asbmt.org

 

Blood and Marrow Transplant Information Network

2310 Skokie Valley Rd., Ste. 104 Highland Park, IL  60035  Phone: 847-433-3313 Toll Free: 888-597-7674 Fax: 847-433-4599 http://bmtinfonet.org/

 

Leukemia Research Foundation

2700 Patriot Blvd., Ste. 100 Glenview, IL  60026-8021  Phone: 847-424-0600 Fax: 847-424-0606 http://www.leukemia-research.org

 

National Bone Marrow Transplant Link

20411 West 12 Mile Rd., Ste. 108 Southfield, MI  48076  Phone: 248-358-1886 Toll Free: 800-LINK-BMT (800-546-5268) Fax: 248-358-1889 http://www.nbmtlink.org

 

National Marrow Donor Program

3001 Broadway St., NE, Ste. 100 Minneapolis, MN  55413-1753  Phone: 800-MARROW2 (800-627-7692) Pat. Adv.: 888-999-6743 http://www.marrow.org

 

National Organization for Rare Disorders (NORD)

55 Kenosia Ave. P.O. Box 1968 Danbury, CT  06813-1968  Toll Free: 800-999-6673 Phone: 203-744-0100 http://www.rarediseases.org

 

Rare Cancer Alliance

1649 N. Pacana Way Green Valley, AZ  85614  http://www.rare-cancer.org

 

The Leukemia and Lymphoma Society

1311 Mamaroneck Ave. White Plains, NY  10605  Phone: 914-949-5213 Toll Free: 800-955-4LSA (4572) http://www.lls.org

 

Leukemia, Chronic Lymphocytic (CLL)

 

American Society for Blood and Marrow Transplantation

85 W Algonquin Rd., Ste. 550 Arlington Heights, IL  60005  Phone: 847-427-0224 Fax: 847-427-9656 http://www.asbmt.org

 

Blood and Marrow Transplant Information Network

2310 Skokie Valley Rd., Ste. 104 Highland Park, IL  60035  Phone: 847-433-3313 Toll Free: 888-597-7674 Fax: 847-433-4599 http://bmtinfonet.org/

 

Leukemia Research Foundation

2700 Patriot Blvd., Ste. 100 Glenview, IL  60026-8021  Phone: 847-424-0600 Fax: 847-424-0606 http://www.leukemia-research.org

 

National Bone Marrow Transplant Link

20411 West 12 Mile Rd., Ste. 108 Southfield, MI  48076  Phone: 248-358-1886 Toll Free: 800-LINK-BMT (800-546-5268) Fax: 248-358-1889 http://www.nbmtlink.org

 

National Marrow Donor Program

3001 Broadway St., NE, Ste. 100 Minneapolis, MN  55413-1753  Phone: 800-MARROW2 (800-627-7692) Pat. Adv.: 888-999-6743 http://www.marrow.org

 

The Leukemia and Lymphoma Society

1311 Mamaroneck Ave. White Plains, NY  10605  Phone: 914-949-5213 Toll Free: 800-955-4LSA (4572) http://www.lls.org

 

 

Leukemia, Chronic Myeloid (CML)

 

American Society for Blood and Marrow Transplantation

85 W Algonquin Rd., Ste. 550 Arlington Heights, IL  60005  Phone: 847-427-0224 Fax: 847-427-9656 http://www.asbmt.org

 

Blood and Marrow Transplant Information Network

2310 Skokie Valley Rd., Ste. 104 Highland Park, IL  60035  Phone: 847-433-3313 Toll Free: 888-597-7674 Fax: 847-433-4599 http://bmtinfonet.org/

 

Leukemia Research Foundation

2700 Patriot Blvd., Ste. 100 Glenview, IL  60026-8021  Phone: 847-424-0600 Fax: 847-424-0606 http://www.leukemia-research.org

 

National Bone Marrow Transplant Link

20411 West 12 Mile Rd., Ste. 108 Southfield, MI  48076  Phone: 248-358-1886 Toll Free: 800-LINK-BMT (800-546-5268) Fax: 248-358-1889 http://www.nbmtlink.org

 

National Marrow Donor Program

3001 Broadway St., NE, Ste. 100 Minneapolis, MN  55413-1753  Phone: 800-MARROW2 (800-627-7692) Pat. Adv.: 888-999-6743 http://www.marrow.org

 

The Leukemia and Lymphoma Society

1311 Mamaroneck Ave. White Plains, NY  10605  Phone: 914-949-5213 Toll Free: 800-955-4LSA (4572) http://www.lls.org

 

Leukemia, Eosinophilic

 

American Society for Blood and Marrow Transplantation

85 W Algonquin Rd., Ste. 550 Arlington Heights, IL  60005  Phone: 847-427-0224 Fax: 847-427-9656 http://www.asbmt.org

 

Blood and Marrow Transplant Information Network

2310 Skokie Valley Rd., Ste. 104 Highland Park, IL  60035  Phone: 847-433-3313 Toll Free: 888-597-7674 Fax: 847-433-4599 http://bmtinfonet.org/

 

Leukemia Research Foundation

2700 Patriot Blvd., Ste. 100 Glenview, IL  60026-8021  Phone: 847-424-0600 Fax: 847-424-0606 http://www.leukemia-research.org

 

National Bone Marrow Transplant Link

20411 West 12 Mile Rd., Ste. 108 Southfield, MI  48076  Phone: 248-358-1886 Toll Free: 800-LINK-BMT (800-546-5268) Fax: 248-358-1889 http://www.nbmtlink.org

 

National Marrow Donor Program

3001 Broadway St., NE, Ste. 100 Minneapolis, MN  55413-1753  Phone: 800-MARROW2 (800-627-7692) Pat. Adv.: 888-999-6743 http://www.marrow.org

 

National Organization for Rare Disorders (NORD)

55 Kenosia Ave. P.O. Box 1968 Danbury, CT  06813-1968  Toll Free: 800-999-6673 Phone: 203-744-0100 http://www.rarediseases.org

 

Rare Cancer Alliance

1649 N. Pacana Way Green Valley, AZ  85614  http://www.rare-cancer.org

 

The Leukemia and Lymphoma Society

1311 Mamaroneck Ave. White Plains, NY  10605  Phone: 914-949-5213 Toll Free: 800-955-4LSA (4572) http://www.lls.org

 

Leukemia, T-Cell

 

American Society for Blood and Marrow Transplantation

85 W Algonquin Rd., Ste. 550 Arlington Heights, IL  60005  Phone: 847-427-0224 Fax: 847-427-9656 http://www.asbmt.org

 

Blood and Marrow Transplant Information Network

2310 Skokie Valley Rd., Ste. 104 Highland Park, IL  60035  Phone: 847-433-3313 Toll Free: 888-597-7674 Fax: 847-433-4599   http://bmtinfonet.org/

 

Leukemia Research Foundation

2700 Patriot Blvd., Ste. 100 Glenview, IL  60026-8021  Phone: 847-424-0600 Fax: 847-424-0606 http://www.leukemia-research.org

 

National Bone Marrow Transplant Link

20411 West 12 Mile Rd., Ste. 108 Southfield, MI  48076  Phone: 248-358-1886 Toll Free: 800-LINK-BMT (800-546-5268) Fax: 248-358-1889 http://www.nbmtlink.org

 

National Marrow Donor Program

3001 Broadway St., NE, Ste. 100 Minneapolis, MN  55413-1753  Phone: 800-MARROW2 (800-627-7692) Pat. Adv.: 888-999-6743 http://www.marrow.org

 

National Organization for Rare Disorders (NORD)

55 Kenosia Ave. P.O. Box 1968 Danbury, CT  06813-1968  Toll Free: 800-999-6673 Phone: 203-744-0100 http://www.rarediseases.org

 

Rare Cancer Alliance

1649 N. Pacana Way Green Valley, AZ  85614  http://www.rare-cancer.org

 

The Leukemia and Lymphoma Society

1311 Mamaroneck Ave. White Plains, NY  10605  Phone: 914-949-5213 Toll Free: 800-955-4LSA (4572) http://www.lls.org

 

Liver Cancer

 

LiverTumor.org

http://www.livertumor.org

 

Lung Cancer

 

American Lung Association

61 Broadway, 6th Fl. New York, NY  10006  Toll Free: 800-586-4872 Phone: 212-315-8700 http://www.lungusa.org

 

It’s Time to Focus on Lung Cancer/Lungcancer.org

Toll Free: 877-646-5864 http://www.lungcancer.org

 

Lung Cancer Alliance

1747 Pennsylvania Ave. NW, 11th Fl. Washington, DC  20006  Toll Free: 800-298-2436 Phone: 202-463-2080 http://www.lungcanceralliance.org

 

Lung Cancer Online

http://www.lungcanceronline.org

 

National Lung Cancer Partnership

222 N. Midvale Blvd., Ste. 6 Madison, WI  53705  Phone: 608-233-7905 http://www.nationallungcancerpartnership.org

 

Lymphoma, Hodgkin

 

American Society for Blood and Marrow Transplantation

85 W Algonquin Rd., Ste. 550 Arlington Heights, IL  60005  Phone: 847-427-0224 Fax: 847-427-9656 http://www.asbmt.org

 

Blood and Marrow Transplant Information Network

2310 Skokie Valley Rd., Ste. 104 Highland Park, IL  60035  Phone: 847-433-3313 Toll Free: 888-597-7674 Fax: 847-433-4599 http://bmtinfonet.org/

 

Lymphoma Research Foundation

8800 Venice Blvd., Ste. 207 Los Angeles, CA  90034  Phone: 310-204-7040 Toll Free: 800-500-9976 Fax: 310-204-7043 http://www.lymphoma.org

 

National Bone Marrow Transplant Link

20411 West 12 Mile Rd., Ste. 108 Southfield, MI  48076  Phone: 248-358-1886 Toll Free: 800-LINK-BMT (800-546-5268) Fax: 248-358-1889 http://www.nbmtlink.org

 

National Marrow Donor Program

3001 Broadway St., NE, Ste. 100 Minneapolis, MN  55413-1753  Phone: 800-MARROW2 (800-627-7692) Pat. Adv.: 888-999-6743 http://www.marrow.org

 

The Leukemia and Lymphoma Society

1311 Mamaroneck Ave. White Plains, NY  10605  Phone: 914-949-5213 Toll Free: 800-955-4LSA (4572) http://www.lls.org

 

The Lymphoma Information Network

http://www.lymphomainfo.net

 

American Society for Blood and Marrow Transplantation

85 W Algonquin Rd., Ste. 550 Arlington Heights, IL  60005  Phone: 847-427-0224 Fax: 847-427-9656 http://www.asbmt.org

 

Blood and Marrow Transplant Information Network

2310 Skokie Valley Rd., Ste. 104 Highland Park, IL  60035  Phone: 847-433-3313 Toll Free: 888-597-7674 Fax: 847-433-4599 http://bmtinfonet.org/

 

National Bone Marrow Transplant Link

20411 West 12 Mile Rd., Ste. 108 Southfield, MI  48076  Phone: 248-358-1886 Toll Free: 800-LINK-BMT (800-546-5268) Fax: 248-358-1889 http://www.nbmtlink.org

 

National Marrow Donor Program

3001 Broadway St., NE, Ste. 100 Minneapolis, MN  55413-1753  Phone: 800-MARROW2 (800-627-7692) Pat. Adv.: 888-999-6743 http://www.marrow.org

 

Patients Against Lymphoma

3774 Buckwampum Rd. Reigelsville, PA  18077  Phone: 610-346-8419 http://www.lymphomation.org

 

The Leukemia and Lymphoma Society

1311 Mamaroneck Ave. White Plains, NY  10605  Phone: 914-949-5213 Toll Free: 800-955-4LSA (4572) http://www.lls.org

 

Lymphoma, Non-Hodgkin

 

American Society for Blood and Marrow Transplantation

85 W Algonquin Rd., Ste. 550 Arlington Heights, IL  60005  Phone: 847-427-0224 Fax: 847-427-9656 http://www.asbmt.org

 

Blood and Marrow Transplant Information Network

2310 Skokie Valley Rd., Ste. 104 Highland Park, IL  60035  Phone: 847-433-3313 Toll Free: 888-597-7674 Fax: 847-433-4599   http://bmtinfonet.org/

 

National Bone Marrow Transplant Link

20411 West 12 Mile Rd., Ste. 108 Southfield, MI  48076  Phone: 248-358-1886 Toll Free: 800-LINK-BMT (800-546-5268) Fax: 248-358-1889 http://www.nbmtlink.org

 

National Marrow Donor Program

3001 Broadway St., NE, Ste. 100 Minneapolis, MN  55413-1753  Phone: 800-MARROW2 (800-627-7692) Pat. Adv.: 888-999-6743 http://www.marrow.org

 

Patients Against Lymphoma

3774 Buckwampum Rd. Reigelsville, PA  18077  Phone: 610-346-8419 http://www.lymphomation.org

 

The Leukemia and Lymphoma Society

1311 Mamaroneck Ave. White Plains, NY  10605  Phone: 914-949-5213 Toll Free: 800-955-4LSA (4572) http://www.lls.org

 

American Society for Blood and Marrow Transplantation

85 W Algonquin Rd., Ste. 550 Arlington Heights, IL  60005  Phone: 847-427-0224 Fax: 847-427-9656 http://www.asbmt.org

 

Blood and Marrow Transplant Information Network

2310 Skokie Valley Rd., Ste. 104 Highland Park, IL  60035  Phone: 847-433-3313 Toll Free: 888-597-7674 Fax: 847-433-4599 http://bmtinfonet.org/

 

Lymphoma Research Foundation

8800 Venice Blvd., Ste. 207 Los Angeles, CA  90034  Phone: 310-204-7040 Toll Free: 800-500-9976 Fax: 310-204-7043 http://www.lymphoma.org

 

National Bone Marrow Transplant Link

20411 West 12 Mile Rd., Ste. 108 Southfield, MI  48076  Phone: 248-358-1886 Toll Free: 800-LINK-BMT (800-546-5268) Fax: 248-358-1889 http://www.nbmtlink.org

 

National Marrow Donor Program

3001 Broadway St., NE, Ste. 100 Minneapolis, MN  55413-1753  Phone: 800-MARROW2 (800-627-7692) Pat. Adv.: 888-999-6743 http://www.marrow.org

 

The Leukemia and Lymphoma Society

1311 Mamaroneck Ave. White Plains, NY  10605  Phone: 914-949-5213 Toll Free: 800-955-4LSA (4572) http://www.lls.org

 

The Lymphoma Information Network

http://www.lymphomainfo.net

 

Mastocytosis

 

National Organization for Rare Disorders (NORD)

55 Kenosia Ave. P.O. Box 1968 Danbury, CT  06813-1968  Toll Free: 800-999-6673 Phone: 203-744-0100 http://www.rarediseases.org

 

Rare Cancer Alliance

1649 N. Pacana Way Green Valley, AZ  85614  http://www.rare-cancer.org

 

Melanoma

 

American Academy of Dermatology

P.O. Box 4014 Schaumburg, IL  60168-4014  Phone: 847-330-0230 Toll Free: 888-462-3376 (DERM) Fax: 847-330-0050 http://www.skincarephysicians.com/skincancernet/

 

Melanoma Center

http://www.melanomacenter.org

 

Melanoma International Foundation

250 Mapleflower Rd. Glenmoore, PA  19343  Toll Free: 866-463-6663 Phone: 610-942-3432 www.melanomaintl.org

 

Melanoma Patients’ Information Page

The Pattersons P.O. Box 389 Cloverdale, CA  95425  http://www.mpip.org

 

Melanoma Research, Inc. (The Billy Foundation)

26203 Production Ave., 12-A/Zebra Ste. Haywood, CA  94545  Phone: 510-264-9078 Toll Free: 888-88-BILLY (888-882-4559) Fax: 510-264-9079 http://www.bfmelanoma.com

 

National Council on Skin Cancer Prevention

c/o Michelle Baker 5800 Wilson Ln. Bethesda, MD  20817  http://www.skincancerprevention.org

 

SunWise Program

U.S. Environmental Protection Agency 1200 Pennsylvania Ave., NW (6205J) Washington, DC  20460  http://www.epa.gov/sunwise

 

The Skin Cancer Foundation

245 Fifth Ave., Ste. 1403 New York, NY  10016  Phone: 212-725-5176 Toll Free: 800-SKIN-490 (800-754-6490) Fax: 212-725-5751 http://www.skincancer.org

 

Meningioma

 

National Organization for Rare Disorders (NORD)

55 Kenosia Ave. P.O. Box 1968 Danbury, CT  06813-1968  Toll Free: 800-999-6673 Phone: 203-744-0100 http://www.rarediseases.org

 

Rare Cancer Alliance

1649 N. Pacana Way Green Valley, AZ  85614  http://www.rare-cancer.org

 

Mesothelioma

 

Mesothelioma Applied Research Foundation

1609 Garden St. Santa Barbara, CA  93101  Phone: 805-560-8942 Fax: 805-560-8962 http://www.marf.org

 

National Organization for Rare Disorders (NORD)

55 Kenosia Ave. P.O. Box 1968 Danbury, CT  06813-1968  Toll Free: 800-999-6673 Phone: 203-744-0100 http://www.rarediseases.org

 

Rare Cancer Alliance

1649 N. Pacana Way Green Valley, AZ  85614  http://www.rare-cancer.org

 

Multiple Myeloma

 

American Society for Blood and Marrow Transplantation

85 W Algonquin Rd., Ste. 550 Arlington Heights, IL  60005  Phone: 847-427-0224 Fax: 847-427-9656 http://www.asbmt.org

 

Blood and Marrow Transplant Information Network

2310 Skokie Valley Rd., Ste. 104 Highland Park, IL  60035  Phone: 847-433-3313 Toll Free: 888-597-7674 Fax: 847-433-4599 www.melanomaintl.org  

 

International Myeloma Foundation

12650 Riverside Dr., Ste. 206 North Hollywood, CA  91607  Phone: 818-487-7455 Toll Free: 800-452-2873 Fax: 818-487-7454 http://www.myeloma.org

 

Multiple Myeloma Research Foundation (MMRF)

383 Main Ave., 5th floor Norwalk, CT  06841  Phone: 203-229-0464 http://www.multiplemyeloma.org

 

National Bone Marrow Transplant Link

20411 West 12 Mile Rd., Ste. 108 Southfield, MI  48076  Phone: 248-358-1886 Toll Free: 800-LINK-BMT (800-546-5268) Fax: 248-358-1889 http://www.nbmtlink.org

 

National Marrow Donor Program

3001 Broadway St., NE, Ste. 100 Minneapolis, MN  55413-1753  Phone: 800-MARROW2 (800-627-7692) Pat. Adv.: 888-999-6743 http://www.marrow.org

 

Neuroendocrine Tumor

 

National Organization for Rare Disorders (NORD)

55 Kenosia Ave. P.O. Box 1968 Danbury, CT  06813-1968  Toll Free: 800-999-6673 Phone: 203-744-0100 http://www.rarediseases.org

 

Rare Cancer Alliance

1649 N. Pacana Way Green Valley, AZ  85614  http://www.rare-cancer.org

 

Oral and Oropharyngeal Cancer

 

Support for People with Oral, Head, and Neck Cancer (SPOHNC)

P.O. Box 53 Locust Valley, NY  11560-0053  Phone: 516-759-5333 Toll Free: 800-377-0928 Fax: 516-671-8794 http://www.spohnc.org

 

The Oral Cancer Foundation

3419 Via Lido, #205 Newport Beach, CA  92663  Phone: 949-646-8000 www.oralcancerfoundation.org

 

Ovarian Cancer

 

Conversations!

P.O. Box 7948 Amarillo, TX  79114-7948  Phone: 806-355-2565 Fax: 806-467-9757 http://www.ovarian-news.org

 

FORCE: Facing Our Risk of Cancer Empowered

16057 Tampa Palms Blvd. W, PMB #373 Tampa , FL  33647  Phone: 954-255-8732 Toll Free: 866-288-RISK (7475) http://www.facingourrisk.org

 

Gilda Radner Familial Ovarian Cancer Registry

Roswell Park Cancer Institute Elm and Carlton Sts. Buffalo, NY  14263-0001  Phone: 800-OVARIAN (800-682-7426) http://www.ovariancancer.com

 

Gynecologic Cancer Foundation (GCF)

230 W Monroe, Ste. 2528 Chicago, IL  60606  Phone: 312-578-1439 Toll Free: 800-444-4441 Fax: 312-578-9769 http://www.thegcf.org

 

National Ovarian Cancer Coalition (NOCC)

500 NE Spanish River Blvd., Ste. 8 Boca Raton, FL  33431  Toll Free: 888-682-7426 Phone: 561-393-0005 http://www.ovarian.org

 

Ovarian Cancer National Alliance

910 17th St., NW, Ste. 1190 Washington, DC  20006  Toll Free: 866-399-6262 Phone: 202-331-1332 http://www.ovariancancer.org

 

SHARE: Self-help for Women with Breast or Ovarian Cancer

1501 Broadway, Ste. 704a New York, NY  10036  Phone: 212-719-0364 Toll Free: 866-891-2392 http://www.sharecancersupport.org

 

Pancreatic Cancer

 

Hirshberg Foundation for Pancreatic Cancer Research

2990 S. Sepulveda Blvd., Ste. 300C Los Angeles, CA  90064  Phone: 310-473-5121 http://www.pancreatic.org

 

Lustgarten Foundation for Pancreatic Cancer Research

1111 Stewart Ave. Bethpage, NY  11714  Phone: 516-803-2304 Toll Free: 866-789-1000 Fax: 516-803-2303 http://www.lustgarten.org

 

Pancreatic Cancer Action Network (PanCAN)

2141 Rosecrans Ave., Ste. 7000 El Segundo, CA  90245  Phone: 310-725-0025 Toll Free: 877-2-PANCAN (877-272-6226) Fax: 310-725-0029 http://www.pancan.org

 

Pancreatica.org

149 Bonifacio Place Monterey, CA  93940  Phone: 831-658-0600 http://www.pancreatica.org

 

Parathyroid Tumor

 

National Organization for Rare Disorders (NORD)

55 Kenosia Ave. P.O. Box 1968 Danbury, CT  06813-1968  Toll Free: 800-999-6673 Phone: 203-744-0100 http://www.rarediseases.org

 

Rare Cancer Alliance

1649 N. Pacana Way Green Valley, AZ  85614  http://www.rare-cancer.org

 

Penile Cancer

 

National Organization for Rare Disorders (NORD)

55 Kenosia Ave. P.O. Box 1968 Danbury, CT  06813-1968  Toll Free: 800-999-6673 Phone: 203-744-0100 http://www.rarediseases.org

 

Rare Cancer Alliance

1649 N. Pacana Way Green Valley, AZ  85614  http://www.rare-cancer.org

 

Pituitary Gland Tumor

 

American Brain Tumor Association (ABTA)

2720 River Rd. Des Plaines, IL  60018  Phone: 847-827-9910 Toll Free: 800-886-2282 http://www.abta.org

 

National Organization for Rare Disorders (NORD)

55 Kenosia Ave. P.O. Box 1968 Danbury, CT  06813-1968  Toll Free: 800-999-6673 Phone: 203-744-0100 http://www.rarediseases.org

 

Rare Cancer Alliance

1649 N. Pacana Way Green Valley, AZ  85614  http://www.rare-cancer.org

 

Prostate Cancer

 

American Urological Association

1000 Corporate Blvd. Linthicum, MD  21090  Toll Free: 866-746-4282 Phone: 410-689-3700 http://www.UrologyHealth.org

 

National Prostate Cancer Coalition (NPCC)

1154 15th St., NW Washington, DC  20005  Phone: 202-463-9455 Toll Free: 888-245-9455 Fax: 202-463-9456 http://www.4npcc.org

 

Prostate Cancer Education Council (PCEC)

7009 S. Potomac St., Ste. 125 Centennial, CO  80121  Toll Free: 866-477-6788 Phone: 303-316-4685 http://www.pcaw.com

 

Prostate Cancer Foundation

1250 Fourth St. Santa Monica, CA  90401  Phone: 310-570-4700 Toll Free: 800-757-CURE (2873) Fax: 310-570-4701 http://www.prostatecancerfoundation.org

 

The Prostate Net

P. O. Box 2192 Secaucus, NJ  07096-2192  Phone: 201-868-7793 Toll Free: 888-4-PROSNET (888-477-6763) Fax: 270-294-1565 http://www.prostate-online.com

 

Us TOO International, Inc.

5003 Fairview Ave. Downers Grove, IL  60515  Phone: 630-795-1002 Toll Free: 800-80-USTOO (800-808-7866 Fax: 630-795-1602 http://www.ustoo.org

 

Sarcoma

 

Sarcoma Alliance

775 E Blithedale, #334 Mill Valley, CA  94941  Phone: 415-381-7236 Fax: 415-381-7235 http://www.sarcomaalliance.org

 

Sarcoma Foundation of America

P.O. Box 458 Damascus, MD  20872  Phone: 301-253-8687 http://www.curesarcoma.org

 

Sarcoma, Alveolar Soft Part and Cardiac

 

National Organization for Rare Disorders (NORD)

55 Kenosia Ave. P.O. Box 1968 Danbury, CT  06813-1968  Toll Free: 800-999-6673 Phone: 203-744-0100 http://www.rarediseases.org

 

Rare Cancer Alliance

1649 N. Pacana Way Green Valley, AZ  85614  http://www.rare-cancer.org

 

Sarcoma, Kaposi’s

 

National Organization for Rare Disorders (NORD)

55 Kenosia Ave. P.O. Box 1968 Danbury, CT  06813-1968  Toll Free: 800-999-6673 Phone: 203-744-0100 http://www.rarediseases.org

 

Rare Cancer Alliance

1649 N. Pacana Way Green Valley, AZ  85614  http://www.rare-cancer.org

 

Skin Cancer (Non-Melanoma)

 

American Academy of Dermatology

P.O. Box 4014 Schaumburg, IL  60168-4014  Phone: 847-330-0230 Toll Free: 888-462-3376 (DERM) Fax: 847-330-0050 http://www.skincarephysicians.com/skincancernet/

 

National Council on Skin Cancer Prevention

c/o Michelle Baker 5800 Wilson Ln. Bethesda, MD  20817  http://www.skincancerprevention.org

 

SunWise Program

U.S. Environmental Protection Agency 1200 Pennsylvania Ave., NW (6205J) Washington, DC  20460  http://www.epa.gov/sunwise

 

The Skin Cancer Foundation

245 Fifth Ave., Ste. 1403 New York, NY  10016  Phone: 212-725-5176 Toll Free: 800-SKIN-490 (800-754-6490) Fax: 212-725-5751 http://www.skincancer.org

 

Small Bowel Cancer

 

National Organization for Rare Disorders (NORD)

55 Kenosia Ave. P.O. Box 1968 Danbury, CT  06813-1968  Toll Free: 800-999-6673 Phone: 203-744-0100 http://www.rarediseases.org

 

Rare Cancer Alliance

1649 N. Pacana Way Green Valley, AZ  85614  http://www.rare-cancer.org

 

Testicular Cancer

 

Testicular Cancer Resource Center

http://tcrc.acor.org

 

Thymoma

 

Rare Cancer Alliance

1649 N. Pacana Way Green Valley, AZ  85614  http://www.rare-cancer.org

 

Thyroid Cancer

 

ThyCa: Thyroid Cancer Survivors’ Association, Inc.

P.O. Box 1545 New York, NY  10159-1545  Phone: 877-588-7904 Fax: 630-604-6078 http://www.thyca.org

 

Uterine Cancer

 

Gynecologic Cancer Foundation (GCF)

230 W Monroe, Ste. 2528 Chicago, IL  60606  Phone: 312-578-1439 Toll Free: 800-444-4441 Fax: 312-578-9769 http://www.thegcf.org

 

Vaginal Cancer

 

Gynecologic Cancer Foundation (GCF)

230 W Monroe, Ste. 2528 Chicago, IL  60606  Phone: 312-578-1439 Toll Free: 800-444-4441 Fax: 312-578-9769 http://www.thegcf.org

 

Vulvar Cancer

 

National Organization for Rare Disorders (NORD)

55 Kenosia Ave. P.O. Box 1968 Danbury, CT  06813-1968  Toll Free: 800-999-6673 Phone: 203-744-0100 http://www.rarediseases.org

 

Rare Cancer Alliance

1649 N. Pacana Way Green Valley, AZ  85614  http://www.rare-cancer.org

 

Waldenström’s Macroglobulinemia

 

National Organization for Rare Disorders (NORD)

55 Kenosia Ave. P.O. Box 1968 Danbury, CT  06813-1968  Toll Free: 800-999-6673 Phone: 203-744-0100 http://www.rarediseases.org

 

Rare Cancer Alliance

1649 N. Pacana Way Green Valley, AZ  85614  http://www.rare-cancer.org

 

Transportation Services

 

Access: Access transportation service is available for any ADA paratransit eligible individual to any location within ¾ of a mile of any fixed bus operated by the Los Angeles County public fixed route bus operators and within ¾ of a mile around METRO Rail stations during the hours that the systems are operational.

For more information: Call (800) 827-1359 or visit http://www.asila.org/home/

 

American Cancer Society (800) 227-2345 may provide free transportation to treatments with advanced arrangements (usually this one is in the form of tokens to take a taxi to treatment)

 

City Ride: Cityride is a transportation assistance program for individuals age 65 or older and qualified disabled persons in the City of Los Angeles and select areas of Los Angeles County. The program offers Cityride participants reduced costs for the purchase of City of Los Angeles permitted taxi rides and Cityride Dial-A-Ride services.

For more information: Call (818) 808-2273or visit http://www.ladottransit.com/other/cityride/#welcome

 

One Generation Senior Services: ONEgeneration’s transportation program serves seniors 65 years or older, or disabled individuals who are unable to access other modes of transportation, and who require door to door transportation assistance within the southwest San Fernando Valley.

For information: Call (818) 705-2345 or visit http://onegeneration.org/transportation

 

Visually Handicapped Services of the Valley: (818) 988-1992